twinmommie72
Distinguished member
- Joined
- Jul 27, 2010
- Messages
- 132
- Reason
- PALS
- Diagnosis
- 08/2010
- Country
- US
- State
- Va
- City
- Southern
"Quality of life"..."Don't think about it"...Forgive me for complaining here. I'm so scared and I don't know what is going to happen next. How can I find some peace? I've prayed and prayed for peace to enter and God take control, but the damn cloud lingers with every twitch. I look into the eyes of my now 4 year old twins and I break down everytime. I don't want them to see me suffer. I don't want to be alive and not be able to hold them. My voice is already bad enough that I can't read them bedtime stories anymore. How can this be happening? I'm wanting to know what can I do to help keep me here a bit longer. I've started the Rilutek but the vomiting is bad...Is it really proven to extend life? I can't see how it can help when the side effects are keeping me from that "quality of life" that I keep hearing. I hated that phrase when my father was diagnosed with cancer. Now I get to hear it ALL the time. Yeap...guess I'm in an angry phase. Someone throw me a life jacket and help me float! I'm drowning in my own tears. Also...does anyone have pain? I'm having some between my shoulder blades. What do you take or do to help it?
Please throw me a rainbow!
Please throw me a rainbow!