Old 10-20-2010, 10:44 AM #1 (permalink)
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Default U.S. National ALS Registry Is Open for Self-Enrollment!

Finally it's here ...
https://wwwn.cdc.gov/als/AboutRegistry.aspx

I encourage all PALS who are U.S. residents to enroll. In the past, the clues from patients' health histories and environmental exposures were not retained. Imo it has been disrespectful of those who have had ALS that we did not retain their clues in a scientific repository.

Starting today that changes.
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