So Upset - Waiting to see ALS Specialist

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joni51

Senior member
Joined
Sep 8, 2010
Messages
992
Reason
Lost a loved one
Diagnosis
10/2010
Country
US
State
Al
City
Valley
This stupid so called friend came to see my husband today. As if our nerves are not tore up enough waiting to go to Emory to see the als specialist. He had the gall to tell my husband he heard he had lou gehrigs, and was he going to die or what. That upset him, and then me. People are so stupid and unfeeling sometimes. i mean we live in small town usa, if one person gets wind of something it spreads like wildfire. So much for him probably maybe getting another job. I just feel so bad for him.
 
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Re: So Upset

Sorry for what y'all had to endure!
 
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Sorry joni, some people are just clueless. All I have to say is you don't need people like that in your life. It will be easy to identify who your true friends are!
 
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Yes you are right, some people are just thoughtless. Yes I know all too well about finding out who your true friends are. When my first husband was battling cancer...they just about all disappeared...so sad. thanks Ted and Brooksea, just frustrated.
 
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So sorry for what was said. I hope you showed your friend the door and your boot followed him out!
Aly
 
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I was not there, had went to pick up my grandbaby at school. Just worries me about how other friends are going to be.
 
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Joni, I'm so sorry. I really think most people are so uncomfortable talking about suffering.... and then someone who's just interested in knowing information comes along wanting to be important. I've got one in my neck of the woods. Hang in there, Joni. People turn around and surprise me with wanting to help, so I have every hope that happens with you guys. Hugs...Hope it's a better day.
Ann
 
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Thanks Ann, I hope you are right. I hope you have a good day too!
 
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joni - sorry to hear about your added pain. a person asked my wife shortly after my diagnosed...."aren't you happy for Kirk? He gets to see Jesus sooner than the rest of us"....true statement...but not great timing or very sensative to our current situation. I agree with Ted, some people just don't know what to say or when to just shut up. tough times do usually reveal who your real friends are. Hoping today his full of laughter and hope for you and your family - Kirk
 
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Hello, and I'm truly sorry for the thoughtless friends out there. But, as devil's advocate, I must say one of our strongest supporters and helpers alsong our journey was one who just blurted just such a statement out. He felt terribly afterwards and realized how uncaring he sounded. He was just so shocked...so I guess what I'm saying give him the chance to surprise you w/ a heart-push from
Jesus!

Our journey is over but I hope to have a little advise to those still in the battle!

God Bless and you are in my prayers!
cris
 
Re: So Upset

Oh, Cris, that's happened to me, too, where someone who was so insensitive suddenly got a Jesus jolt, and then helped. As I write I can think of others who have been insensitive in other ways, but then realized it and apologized, and got the "heart push".

Kirk, it's one thing for us to look forward to going to be with Jesus and to say so.... but hardly appropriate for someone else to say to your wife at this point.

It's just plain difficult for anyone to say anything helpful. In the book of Job, all was helpful as long as his friends stayed quiet... When they began to give him advice, they all (including Job) ended up the creek...
 
Re: So Upset

Hello Joni,
I'm sorry you and your husband have to go through this, and yes our friends and family can say things that upset you, but after
awhile you will be able to ignore it and move on.
GOD Bless Wayne
 
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Kirk you are so right! I just personally would never say anything like that to anybody...no matter what the circumstances. I am sorry someone said that to your wife. Cris maybe you are right, I hope you are doing ok, and I am so sorry about your husband!Wayne, Sue and Ann ...all of the people on this forum are just so nice and understanding. When I talk about something or someone else does...we all kind of understand.
 
Most people don't know what to say, but usually those people just dissapear out of your life. Thats what happened to me, but words like that are unheard of! Hopefully he will think about what he said, and try to make right!
 
sounds like your pals so called friend has a neurological problem of his own. . A severe case of ass being connected to the brain stem! Sorry that you have to endure people like that . . Totally thoughtless . . God bless . . . alex
 
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