hke2000
Member
- Joined
- Sep 4, 2010
- Messages
- 10
- Reason
- CALS
- Diagnosis
- 7/2010
- Country
- rth
- State
- trk
- City
- smwhr
Hi everybody,
My husband,38 years old,diagnosed with ALS last July. It started with slurry speech in December ( 2009). He can still walk without a cane . His speech is worse than before, I sometimes ask him to repeat. Weakness has started in his left arm and foot. He has balance problems. His last FVC is 80%. We will check for it on 7 October again.
Actually our neurologist in Turkey said that the probability of being ALS is %50 we will wait and follow.
Now we are having Rocephin injection in order to eleminate the possiblity of LYME. I am so sad for him for my children ( two daughters 11 - 4 years old).
In Turkiye doctors dont put the patients in to different ALS groups. not PLS or MND . I wonder how can we decide whether Als or Pls what are the differences between them
We think that after he started to use rilutek the progress of symptoms has increased .
What do you think about Rilutek?
Sorry for my English.
Thank you
god bless all of you, best wishes from Türkiye
My husband,38 years old,diagnosed with ALS last July. It started with slurry speech in December ( 2009). He can still walk without a cane . His speech is worse than before, I sometimes ask him to repeat. Weakness has started in his left arm and foot. He has balance problems. His last FVC is 80%. We will check for it on 7 October again.
Actually our neurologist in Turkey said that the probability of being ALS is %50 we will wait and follow.
Now we are having Rocephin injection in order to eleminate the possiblity of LYME. I am so sad for him for my children ( two daughters 11 - 4 years old).
In Turkiye doctors dont put the patients in to different ALS groups. not PLS or MND . I wonder how can we decide whether Als or Pls what are the differences between them
We think that after he started to use rilutek the progress of symptoms has increased .
What do you think about Rilutek?
Sorry for my English.
Thank you
god bless all of you, best wishes from Türkiye
