abbas child
Very helpful member
- Joined
- Feb 29, 2008
- Messages
- 2,168
- Reason
- PALS
- Diagnosis
- 07/2007
- Country
- US
- State
- Maryland
- City
- Eastern Shore
I have heard many times that SSDI and Medicare are automatically given to folks with an ALS diagnosis... and I've heard this from people who are considered wise and smart. The truth is... if you were an at-home person not receiving payment (or I suppose a traveling person not receiving payment...) for five out of the last ten years, then you cannot receive either SSDI or Medicare. Now, all you need is about $1,500 per year for that income. But no income equals no Medicare until age (I think) 65, maybe 66.
I've read this information on my statement but was asked to call and let them know I have ALS, and see if it made any difference. It did not. I spoke with a lovely woman who tried very hard to find a way to help me. (I wasn't always a kept woman, but was definitely not a high earner at my best. Ridiculous what the county paid teachers in the 70s, but that's all history.)
I have an employed husband, and he has me covered with insurance. I'm blessed in this way. If I were alone, I could probably get Medicaid... after they took my house, I expect.
I thought this was interesting, because it's not apparently common knowledge. That's why I'm sharing it.
I've read this information on my statement but was asked to call and let them know I have ALS, and see if it made any difference. It did not. I spoke with a lovely woman who tried very hard to find a way to help me. (I wasn't always a kept woman, but was definitely not a high earner at my best. Ridiculous what the county paid teachers in the 70s, but that's all history.)
I have an employed husband, and he has me covered with insurance. I'm blessed in this way. If I were alone, I could probably get Medicaid... after they took my house, I expect.
I thought this was interesting, because it's not apparently common knowledge. That's why I'm sharing it.