Old 09-08-2010, 09:41 AM #1 (permalink)
New Member
 
Join Date: 2010
City: Jackson
State: TN
Country: US
Diagnosed: 02/2010
Interest: I am a family member of someone with ALS/MND.
Posts: 50
NHAMM is on a distinguished road
NHAMM NHAMM is offline
New Member
Join Date: 2010
City: Jackson
State: TN
Country: US
Diagnosed: 02/2010
Interest: I am a family member of someone with ALS/MND.
Posts: 50
NHAMM is on a distinguished road
Default Drooling/Coughing

My mother has ALS, bulbar onset. She was diagnosed back in Feb., it gets harder each day to see her go down in some way. I am needing advice now on something new. She has the Bipap and the cough assist, it has been hard getting her to use these but she has gotten better about it. Here lately her cough has gotten worse. Sometimes she just has coughing spells but she cannot get anything up, she said sometimes it feels like she needs to reach back there and get stuff out of her throat, I have also noticed a gurgling sound some times in her throat. She also is having a lot of trouble with drooling. She is on ampitriptylene(not sure if spelled right), she said the roof of her mouth is very dry but the bottom is not. Does anyone have any suggestions of anything to help either of these issues?

Any advice is appreciated, God Bless,
NHAMM is offline  
Old 09-08-2010, 03:23 PM #2 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Drooling/Coughing

I am very much the same as your mom. You mentioned the cough assist and Bipap but not a suction machine, I hope that she has one and uses it. I have a Bipap that I use every night, don't yet have a cough assist but by far the most important piece of equipment that I have is my suction machine.

I am totally peg tube fed now so I don't worry about choking on food or liquids but have serious problems with phlem and mucous in my throat. Something that works for me is flushing my mouth and throat with club soda which really helps in cutting through the goo. I have a waterpik water flosser and I put the club soda into it and direct the flow to the back of my mouth while I am bent over the sink. Often the goo just flows right out but if it doesn't then I use the Yankauer tip on the suction machine to suck out the phlem.

It is so awful to have a mucous plug that makes it hard to breathe but if I do a flush and suction before I do a feed (less chance of gagging and vomiting with a not full stomach) I am ok. I am on Glycoprryolate 3 times a day to dry myself up and reduce the saliva and phlem.

I hope this helps, all the best to you and your mom.

Barry
BarryG is offline  
Old 09-08-2010, 03:31 PM #3 (permalink)
LizT's Avatar
Very Helpful Member
 
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
LizT LizT is offline
Very Helpful Member
LizT's Avatar
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
Default Re: Drooling/Coughing

i agree with what barry has suggested. also, this wont stop the drooling, but helps with the mess- you can roll up washcloths and put it under your moms chin to sort of catch the saliva.
LizT is offline  
Old 09-08-2010, 04:00 PM #4 (permalink)
Phil M's Avatar
Senior Member
 
Join Date: 2008
City: Snellville
State: Ga
Country: US
Diagnosed: 5/2008
Interest: I have been diagnosed with ALS.
Posts: 623
Phil M is on a distinguished road
Phil M Phil M is offline
Senior Member
Phil M's Avatar
Join Date: 2008
City: Snellville
State: Ga
Country: US
Diagnosed: 5/2008
Interest: I have been diagnosed with ALS.
Posts: 623
Phil M is on a distinguished road
Default Re: Drooling/Coughing

What Barry said. Glycoprryolate is pretty good at keeping the mouth dry. I haven't tried any of the other things though. The suction machine is a must have, and she would need to experiment with it to learn how to use it deep in the throat safely. Use it atleast once a day whether she thinks she needs it or not. Taking something to dry the mouth will make saliva really thick, so it can turn into a plug. Need to fish for it everyday just incase.
God bless!
Phil M is offline  
Old 09-08-2010, 09:15 PM #5 (permalink)
t34gib's Avatar
Member
 
Join Date: 2009
City: Fort Pierce
State: FL
Country: US
Diagnosed: 12/2008
Interest: Bulbar onset diagnosed 12/2008
Posts: 234
t34gib is on a distinguished road
t34gib t34gib is offline
Member
t34gib's Avatar
Join Date: 2009
City: Fort Pierce
State: FL
Country: US
Diagnosed: 12/2008
Interest: Bulbar onset diagnosed 12/2008
Posts: 234
t34gib is on a distinguished road
Default Re: Drooling/Coughing

I have had a lot of trouble lately with the mucous and phlem. I do use the cough assist and it does help to clear the airways. It is scary when you can't breathe because of a plug and that is when you need to try short breaths through the nose while you gain control. The cough assist and and the suction machine helps keep me cleared most of the time. For some reason it seems to get worse toward night time or maybe I just notice it more now. I still go to work a few afternoons a week and have found that I need to have the suction machine close by at all times so I can clear it when needed.
Nancy
t34gib is offline  
Old 09-08-2010, 09:53 PM #6 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Drooling/Coughing

Nancy, my worst time is in the early evening too. I don't know why that is but I find that if I do a flush and suction a few times during the day I can head off any blockages. I have a battery powered suction machine that I take with me when I go out or travel.
BarryG is offline  
Old 09-10-2010, 09:34 AM #7 (permalink)
New Member
 
Join Date: 2010
City: Jackson
State: TN
Country: US
Diagnosed: 02/2010
Interest: I am a family member of someone with ALS/MND.
Posts: 50
NHAMM is on a distinguished road
NHAMM NHAMM is offline
New Member
Join Date: 2010
City: Jackson
State: TN
Country: US
Diagnosed: 02/2010
Interest: I am a family member of someone with ALS/MND.
Posts: 50
NHAMM is on a distinguished road
Default Re: Drooling/Coughing

Thank you so much for your response, she was taking that medicine but caused her alot of acid reflux so she had stopped. We are calling today about the suction machine, she was not real receptive of the idea, but hopefully once we get it she will use it more. Her dad died of something similar several years ago. Even though they never called it ALS by the way he did and what I have read that has to be what he had, but at the end we would have to help suction his throat out and I think right now that is why she is hesitant about it.
NHAMM is offline  
Old 09-10-2010, 11:55 AM #8 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: west branch
State: michigan
Country: US
Diagnosed: 03/2008
Interest: it has me giving up a good part of my life.
Posts: 5
bhughey is on a distinguished road
bhughey bhughey is offline
New Member (Say Hi)
Join Date: 2010
City: west branch
State: michigan
Country: US
Diagnosed: 03/2008
Interest: it has me giving up a good part of my life.
Posts: 5
bhughey is on a distinguished road
Default Re: Drooling/Coughing

I am have the same problem thanks for the information

always keeping the faith becky
bhughey is offline  
Closed Thread

Tags
advice, als, back, bipap, bulbar, bulbar onset, cough assist, coughing, diagnosed, onset


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Controlling Drooling Robin Leigh General Discussion About ALS/MND 3 08-10-2015 05:36 PM
drooling stumble People With ALS - "PALS" 0 06-26-2014 07:40 PM
Excess saliva and drooling alador Tips, Tricks, and Gadgets 16 01-19-2013 04:24 PM
Drooling lizzie11957 General Discussions About PBP 9 07-31-2011 11:38 AM
atrophine for drooling Mahealani People With ALS - "PALS" 2 06-08-2011 06:46 PM
wow - excessive drooling Phil's wife Current Caregivers (CALS) 8 05-18-2011 06:56 AM
New ideas to help with drooling NHAMM General Discussion About ALS/MND 1 10-31-2010 08:47 PM
Coughing greenjeans General Discussion About ALS/MND 11 04-13-2008 11:42 AM
Drooling kylisa Do I Have ALS? Is This ALS? 1 03-04-2008 06:43 AM
Botox injections for excessive drooling Markbreton Current Caregivers (CALS) 2 01-09-2008 09:17 PM


All times are GMT -5. The time now is 03:49 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016