Joyce Arline
Member
- Joined
- Jul 31, 2010
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 05/2010
- Country
- US
- State
- Georgia
- City
- Suwanee
I am concerned about my friend who was diagnosed 5/10 with ALS. His condition is rapidly deteriorating and he is basically bedbound now. His breathing is becoming worse and worse every day. Tried the BiPap but couldn't handle it. On cough assist which last week helped but less helpful this week. Breathing is worse every day. I read that oxygen is contraindicated for patients with ALS but is there any time that it is used for comfort measures. He is on hospice and has been taking morphine and ativan. He also is having problems with constipation. Able to eat a little but no appetite. We have a hoyer lift to transfer him from bed to recliner. He is very disgusted with this disease. Any thoughts especially about use of oxygen?