TedH5
Very helpful member
- Joined
- May 17, 2010
- Messages
- 1,142
- Reason
- PALS
- Diagnosis
- 08/2010
- Country
- US
- State
- GA
- City
- McDonough
Well unfortunately the speculation is over and the unofficial diagnosis has now become official. I had another EMG today and was told I now officially meet all of the clinical criteria for ALS. My leg had already had 3 muscles in it that had shown dirty in the EMG so that was one region. Today my tricep, bicep and shoulder muscle all tested dirty so that was the second region and then my back EMG test was also dirty so that was the third region. With all of the normal MRI's, blood tests, no loss of sensation and evidence of both upper and lower UMN issues my Dr. said that it is absolutely ALS.
On 8/31 I see Dr. Glass at Emory for both confirmation and to see if I qualify for any trials and to meet with the rest of his staff at the ALS clinic. Obviously no one wants to receive this diagnosis as all of you know all too well. That being said I had already been told that this was what I most likely had and at least now with the diagnosis I will be able to qualify and receive whatever support I need down the road.
In the meantime I will continue to stay strong, keep the faith and live my life to the fullest every day! As many of you have said it it is not the years in your life that count, it's the life in your years that matter! I have been blessed with a wonderful wife and 3 beautiful kids, I am going to make everyday with them count!
On 8/31 I see Dr. Glass at Emory for both confirmation and to see if I qualify for any trials and to meet with the rest of his staff at the ALS clinic. Obviously no one wants to receive this diagnosis as all of you know all too well. That being said I had already been told that this was what I most likely had and at least now with the diagnosis I will be able to qualify and receive whatever support I need down the road.
In the meantime I will continue to stay strong, keep the faith and live my life to the fullest every day! As many of you have said it it is not the years in your life that count, it's the life in your years that matter! I have been blessed with a wonderful wife and 3 beautiful kids, I am going to make everyday with them count!
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