pamdemonium
Active member
- Joined
- Jul 23, 2010
- Messages
- 47
- Reason
- Loved one DX
- Country
- US
- State
- NY
- City
- Albany
Hello. This is my first post. My name is Pamela. My father-in-law was diagnosed with ALS (PBP onset), in February of this year. We are all struggling to come to terms with this. He is rapidly losing his ability to speak.
My father-in-law is well-loved and many people are coming to visit him. He really loves the company and is exhausting himself with his efforts to communicate and keep things as 'normal' as he can for his friends and family. After these visits, he is wiped out and sometimes has a couple of bad days where he seems to lose ground. Then, after some rest, he seems to bounce back.
If he keeps overdoing it, can he cause what have been temporary changes to become permanent? Could it cause the disease to move more rapidly? I love that his friends want to be with him but I am also feeling very protective of him as well.
Pamela
My father-in-law is well-loved and many people are coming to visit him. He really loves the company and is exhausting himself with his efforts to communicate and keep things as 'normal' as he can for his friends and family. After these visits, he is wiped out and sometimes has a couple of bad days where he seems to lose ground. Then, after some rest, he seems to bounce back.
If he keeps overdoing it, can he cause what have been temporary changes to become permanent? Could it cause the disease to move more rapidly? I love that his friends want to be with him but I am also feeling very protective of him as well.
Pamela