Old 09-04-2006, 07:10 AM #46 (permalink)
Snowbird's Avatar
New Member
Join Date: 2004
Posts: 61
Snowbird is an unknown quantity at this point
Snowbird Snowbird is offline
New Member
Snowbird's Avatar
Join Date: 2004
Posts: 61
Snowbird is an unknown quantity at this point

Hi Crystal!

I am sorry to hear about your dad. As everyone has mentioned, spend your time, money, and energies enjoying your dad and your family. Build more precious memories, lots of them.

What really helped me to make our days happier (and this is not a commercial), was purchasing Dr. Laura's book on the 'Proper Care and Feeding of Husbands', which is spiritual feeding of course. It came at just the right time, and I have since adopted my life to many of her theories. I have no regrets and no anger over the time that my husband and I "LIVED WITH ALS".

Yes, "LIVED", ...........that is the key!

I also researched possible causes of ALS in the hopes that the information might help future victims in preventing them from acquiring the disease. I did my research on this forum by asking other members what their life experiences had been. Some will remember when we all worked on this. It was a great discussion.

What we noticed were a few similarities, and to this day, I would put my life down saying that 'inhaled fumes' attribute to 90% of ALS.

Where I live, the stats indicate that the highest incidence of ALS is amongst farmers, second is the auto industry, and third is firefighters.

Well, quess what! My husband has farmed his entire life. (Lots of chemicals, sprays, aerial sprays, etc. etc.)

He also owned an auto and ag equipments dealership. Chemicals, you bet, including paint shop.

AND he was fire chief for many years. Three strikes against him.

All of those contrubute to countless opportunities for inhaled fumes. AND my father-in-law and brother-in-law also died at very young ages of cancer. They worked with my husband in the same industries.

All three of these men were private pilots, and fueled their own aircraft.

They also used diesel fuels and gasoline extensively.

We found on this site that there were a few ALS victims that were involved in aviation maintenance. Once again, fumes. I don't think that we had any commerical pilots, but I could be wrong.

There was also the soccer or football team in Italy in which half of the team acquired ALS. They found that the grounds were maticulously groomed and lots of chemicals were used on the greens. Lots of 'face plants' on the grass.

One of our equine vets told me that he lost 5 middle-aged large-animal veterinary colleagues to ALS.

You will find that the people on this site will be far more helpful to you than much of the other commerical research. As suggested, some of those have hidden agendas. However, the people on this site are actually LIVING WITH ALS. They welcome you and your family on this site, and they will help you with any of your questions.

If you can think of the wiring to your muscles being like an electrical cord, imagine that one or more of the interior wires gets damaged and the messages no longer reach the muscles. That is how our neuroligst explained ALS to us. With MS, the insulation becomes damaged, but not the wires themselves. That makes sense to me and helped us to understand the disease.

Keep asking your questions on this site, and see what others have experienced.

Above all, treat your dad like the king he is, and your mom like the queen she is. Try to enjoy your lives, and above all, look after yourselves. I didn't look after myself, and I paid the price. Now I am healthy again, but there isn't a day that goes by that my husband doesn't talk to me in one way or another. I am so grateful for his memories and his constant presence.

Best of luck, and we all love you.


Last edited by David : 09-04-2006 at 05:22 PM
Snowbird is offline  
Closed Thread

als, athletic, cramps, dad, diagnosed, diagnosis, mercury, muscle, stroke, support

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
son recently diagnosed GailV Current Caregivers (CALS) 7 07-10-2015 12:18 AM
Mom diagnosed recently Will4 Newly Diagnosed 7 03-20-2015 10:03 AM
Recently Diagnosed jDv1978 Newly Diagnosed 9 09-16-2014 11:51 AM
Recently diagnosed Chris3274 General Discussion About PLS 8 04-12-2014 10:10 AM
Recently diagnosed argie22 Newly Diagnosed 3 09-22-2013 06:18 PM
Recently diagnosed Jayne A Newly Diagnosed 16 08-17-2013 11:59 PM
Recently diagnosed dbach People With ALS - "PALS" 10 06-24-2012 08:50 PM
Recently diagnosed jaws People With ALS - "PALS" 33 04-26-2011 04:29 PM
Recently diagnosed with PMA optimistic4 General Discussions About PMA 17 03-28-2008 04:57 PM
Dad Recently Diagnosed With ALS shellshell Welcome New Members - Say Hello 4 04-12-2007 09:52 AM

All times are GMT -5. The time now is 10:52 AM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016