bkbailey
New member
- Joined
- Jun 30, 2010
- Messages
- 3
- Reason
- CALS
- Diagnosis
- 11/2005
- Country
- US
- State
- WI
- City
- Woodruff
My husband has ALS and was diagnosed 11/05, so we are so much more fortunate than many others. His progression has been slow, however his speech has deteriorated to be point where he can hardly be understood and he uses a mobility scooter to get around. The reason I am writing is to ask for advice. My husband gets so upset and angry with me when I don't understand what he is trying to say. I can only imagine how challenging, frustrating, frightening etc etc this disease is. Of course, like many caregivers, I do just about everything for him and this really hurts. I love him totally. I guess I live with this disease every day just like he does. Does anyone have any encouraging words I can use with him or maybe I am just looking for somewhere to vent. Anyway thanks!