Elven_Star
New member
- Joined
- Jun 28, 2010
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 06/2007
- Country
- IR
- State
- Qazvin
- City
- Qazvin
My dad was diagnosed in July 2007 with ALS. When I asked his doctor whether he was sure or not, he said EMG test results are conclusive. Is that true?
My dad is completely immobile and using ventilator now. It's starting to affect his eyes too. He can't completely close his eyes when he wants to sleep for example and asks us to do it for him. Since his eye movement is the only way he can communicate with us, it has me worried. Can eyeballs completely stop moving? That'd be devastating for him. As if he is not under enormous pressure already. Why is it happening so fast? I read somewhere ALS doesn't affect eye movements in the majority of people and in some rare cases it affects the eyes after around 15 years.
Sorry if that sounded like an endless stream of whines. You know how it's like.
My dad is completely immobile and using ventilator now. It's starting to affect his eyes too. He can't completely close his eyes when he wants to sleep for example and asks us to do it for him. Since his eye movement is the only way he can communicate with us, it has me worried. Can eyeballs completely stop moving? That'd be devastating for him. As if he is not under enormous pressure already. Why is it happening so fast? I read somewhere ALS doesn't affect eye movements in the majority of people and in some rare cases it affects the eyes after around 15 years.
Sorry if that sounded like an endless stream of whines. You know how it's like.