Marypotter
Member
- Joined
- Mar 6, 2010
- Messages
- 10
- Reason
- PALS
- Diagnosis
- 05/2007
- Country
- IRE
- State
- co.clare
- City
- kilkee
I go in to hospice for restspite to give my carers and family a break. at the hospice I made a living will. I have refused to be be peg fed. I have refused antbiotics. Do not want any medical intervention and want nature to take its course. At the moment can not use hands. Am in a wheel chair. To me the cruelest part of disease can not speak any more. I have being told a should be on a soft diet. I can not do nothing for my self. I can stand up with help. I use motor med. On legs and hands and can do it with out aid of motor. My hands are straped on. Since being diagnosed with als I gained about eighteen lbs. I am so healthy other wise. My lungs seem okay. What I feel is this illness will take me bit by bit and linger as a vegetable for a couple of years. I am a catholic and have got advice from a priest and he told me that god will love me no matter my decisions. I have no fear of my god and he had only three days of suffering and he under stands when our suffering lingers for years and that I want out of it. No matter what way you look at it will not find a cure for years,. Even my family accept my decisions and have been told every thing by doctor. Their range in age from seventeen to twenty six. When I pass over I want my family not to grieve but be happy do not have any more suffering. I live on a farm and if had a ailing animal we would take it out of its suffering. please these are my opinions and do not wish to up set any one. I do not have any muscles wasting only in shoulders and and wrists. People do not notice shoulders unless I tell them. Do not suffer suffer much from fatigue.