bmb3641
Member
- Joined
- May 11, 2008
- Messages
- 18
- Reason
- PALS
- Diagnosis
- 10/2007
- Country
- US
- State
- Montana
- City
- Columbia Falls
Hello
I was diagnosed in 2007. It started in my right hand and my progression has been fairly
slow. In the last few months my weight went from 198 lbs to 173lbs. Both hands and legs are affected. My lung fvc is still 94% but my throat is starting to become affected.
I have had aspirating pnemonia in the past. I can drink as long as my head is straight but if it is tilted back at all I can't swallow and it comes out my nose. Is this normal progression? Do I have to worry about choking in my sleep? Is there any suggestions?
Thank you
Brendan
I was diagnosed in 2007. It started in my right hand and my progression has been fairly
slow. In the last few months my weight went from 198 lbs to 173lbs. Both hands and legs are affected. My lung fvc is still 94% but my throat is starting to become affected.
I have had aspirating pnemonia in the past. I can drink as long as my head is straight but if it is tilted back at all I can't swallow and it comes out my nose. Is this normal progression? Do I have to worry about choking in my sleep? Is there any suggestions?
Thank you
Brendan