letitrain
New member
- Joined
- Jun 4, 2010
- Messages
- 7
- Reason
- Loved one DX
- Country
- US
- State
- ohio
- City
- cincinnati
hi everyone - my mom was diagnosed with als on march 22nd of this year. she is 55 years old and was working as a RNA but has now had to quit her job. my mom is the most amazing and strongest person in my life. i'm so scared about everything she's going to have to go through. i'm very confused about this disease and could use any help understanding it better. i am the strong one as far as my family is concerned but inside i am crumbling. along with my mother having als , my brother's biological father also has it. he was diagnosed about 1 1/2 years ago and at that time informed my grandparents of his diagnosis so they could let my brother know. now that my mom has also been diagnosed i feel like maybe it was some kind of environmental factor is the cause of their als and not genetics. so, because of this i'm so scared that my brother will be diagnosed (he doesn't want to know if he has it) with this same thing. has anyone ever had two parents that have als? i also feel very guilty for things like not having any grand-children for my mom and she hasn't gotten to see me get married or become who i want to be. i'm just a server and wish i could be something great for my mom to be proud of. every day i cry a little to myself but feel stupid for doing so because it's not going to fix anything. my friend said i need some kind of support group but the only one i know of around here(cincinnati) my mom is attending and i don't want her to see what this is doing to me ......so i found this group and am hoping someone that reads this can help me, for my mom's sake if not for my own. thank you to anyone that may read this and have some kind of advice/support.