Eponine
Member
- Joined
- Jul 20, 2006
- Messages
- 18
- Reason
- CALS
- Country
- US
- State
- MA
- City
- Springfield
Hello,
Wow, I am happy to have found these boards. I have been reading some of the topics and it's exactly like what I am going through.
My dad first showed symptoms back in the fall. Muscle spasms in the arms. I would say to him that something was wrong, but being a stubborn man, according to him, nothing was wrong.
Fast forward to the holidays. He did look good and my siblings and I tried getting him to a Doctor. Nope.
Finally in March, he went. At this point, his left arm was bad. Spasms in arms and legs. The Doctor did and EKG thinking it was a stroke. We now know it wasn't. So, back and forth to the doctors in the following months. We had made an appointment in March to see the neurologist but couldn't get in until August.
In early July, his back starting hurting him. Back to the doctors for more tests. It was then discovered that he has prostate cancer. We found that out on the 6th. This past monday, he went for a biopsy. We then got a call that same day that the neurologist saying that had an appointment open for yesterday. My sister took and there we learned what I suspected for a while. ALS. He is scheduled for an MRI and more blood work next week.
It's been a crappy 24 hours. My dad is deeply depressed and emotional. He told the Doctors that he does not want a feeding tube. Since March, I have noticed that he is getting worse. He is quickly losing the mobility in his other arm and his legs are getting weaker.
I'm scared. I don't want him to suffer and I'm so overwhelmed because I have no clue how I'm going to do this. I live with my dad. I have a brother (whose married with 3 kids) and a sister (who is single). Yes, they help too but I'm with him all the time when I'm not working.
I felt like the biggest jerk this morning going off to work. I felt guilty. He was crying. I was trying to tell him it would be ok but he kept saying no. I sent my brother over after I left. I don't want him to be alone all day. I got him up, dressed and fed. We are having a nurse come in to determine what to do with him, where to place him in the house, etc.
I am looking forward to all the information and suggestions from everyone. At least with this forum, I know I'm not alone.
Thanks for listening!
Wow, I am happy to have found these boards. I have been reading some of the topics and it's exactly like what I am going through.
My dad first showed symptoms back in the fall. Muscle spasms in the arms. I would say to him that something was wrong, but being a stubborn man, according to him, nothing was wrong.
Fast forward to the holidays. He did look good and my siblings and I tried getting him to a Doctor. Nope.
Finally in March, he went. At this point, his left arm was bad. Spasms in arms and legs. The Doctor did and EKG thinking it was a stroke. We now know it wasn't. So, back and forth to the doctors in the following months. We had made an appointment in March to see the neurologist but couldn't get in until August.
In early July, his back starting hurting him. Back to the doctors for more tests. It was then discovered that he has prostate cancer. We found that out on the 6th. This past monday, he went for a biopsy. We then got a call that same day that the neurologist saying that had an appointment open for yesterday. My sister took and there we learned what I suspected for a while. ALS. He is scheduled for an MRI and more blood work next week.
It's been a crappy 24 hours. My dad is deeply depressed and emotional. He told the Doctors that he does not want a feeding tube. Since March, I have noticed that he is getting worse. He is quickly losing the mobility in his other arm and his legs are getting weaker.
I'm scared. I don't want him to suffer and I'm so overwhelmed because I have no clue how I'm going to do this. I live with my dad. I have a brother (whose married with 3 kids) and a sister (who is single). Yes, they help too but I'm with him all the time when I'm not working.
I felt like the biggest jerk this morning going off to work. I felt guilty. He was crying. I was trying to tell him it would be ok but he kept saying no. I sent my brother over after I left. I don't want him to be alone all day. I got him up, dressed and fed. We are having a nurse come in to determine what to do with him, where to place him in the house, etc.
I am looking forward to all the information and suggestions from everyone. At least with this forum, I know I'm not alone.
Thanks for listening!