Robert Redmond
Active member
- Joined
- Mar 20, 2010
- Messages
- 40
- Reason
- Loved one DX
- Country
- US
- State
- FL
- City
- Daytona Beach
My brother was moved to Arkansas after his diagnosis so my only contact with him now is through his new wife and I talk to him very little. It is very hard for him to talk so I have limited time on the phone with him. Mostly he'll say about 10 words max during our conversation.
A common thing I hear from his wife is him having a hard time breathing. She apparently thinks part of it is panic on his part and they are going to give him more pain medication to calm him down but I asked her this question-
How will you know when it is time for him to go on the trache?
Her response is that he'll tell her. He is still able to let her know.
I asked her if the doctor gave her signs to look for and she replied with the same answer, that he'll let her know when he is ready. She had said before that he wants to delay it
as much as possible.
So my question is, how will he know? I know he has lost control of body parts a bit at a time and when they go, they go. Will this happen to his diaphragm? Will it just go and will he be laying there suffocating?
Any advice on when someone should go on the trache so I can pass this on to her? I hate to think that she is sitting there thinking he is in panic mode when he is actually on the verge of losing the ability to breathe completely.
He does have an oxygen line and a machine that he uses for breathing treatment (think this is called the bipap?)
A common thing I hear from his wife is him having a hard time breathing. She apparently thinks part of it is panic on his part and they are going to give him more pain medication to calm him down but I asked her this question-
How will you know when it is time for him to go on the trache?
Her response is that he'll tell her. He is still able to let her know.
I asked her if the doctor gave her signs to look for and she replied with the same answer, that he'll let her know when he is ready. She had said before that he wants to delay it
as much as possible.
So my question is, how will he know? I know he has lost control of body parts a bit at a time and when they go, they go. Will this happen to his diaphragm? Will it just go and will he be laying there suffocating?
Any advice on when someone should go on the trache so I can pass this on to her? I hate to think that she is sitting there thinking he is in panic mode when he is actually on the verge of losing the ability to breathe completely.
He does have an oxygen line and a machine that he uses for breathing treatment (think this is called the bipap?)