smithl32
Member
- Joined
- Apr 2, 2010
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 3/2010
- Country
- US
- State
- TX
- City
- houston
Hello Everyone,
You guys can call me Smitty. I have been following the forum for about 4 months now. I want to say I have learned so much about the human spirit following you guys along this ALS journey. I have been diagnosed with ALS and the funny thing is once you realize you have this or MAY have this you can remember little things like tripping or clumsiness or whatever that you just ignored.
Well I have a lot of questions although I have been on the internet for months like many PALS looking for any shred of information on slowing down progression, a cure, some hope, something! I know this is a common course of action. Here are my questions.
Is Steven Shackel just a guy who had a slow progression? His website is so in-depth. Do any of these supplements really do anything? Ex. Cq10, antioxidents, etc….
Why are the doctors so non-supportive of other diagnosis? I have a small disc bulge and back issues they will not even consider. (The VA in Houston and Dr. Harati in Houston) Although it may not be an issue they seem so ready to take any hope away.
I am a veteran and I served in Iraq. I was also bitten by a tick in Tennessee while in the military. Dr. Harati quickly dismissed this can be Lyme disease. He said to stay of the internet. Why would he say this when they are testing Ceftriaxone which is used to treat Lyme disease?
I seem to have progressed faster once I stopped exercising.
I believe stress is one of the main culprits in this disease pre and post diagnosis.
I have been told that no one recovers or goes into remission; If someone claims this than they didn’t have ALS. I am sorry but I don’t think the doctors know much about this disease at all in my opinion.
Lastly although I have some amount of fear about the future, my experience with ALS has alleviated much some of the pain, animosity, and selfishness I have carried for years and I honestly wonder if this was the true toxicity in my body….
Smitty
You guys can call me Smitty. I have been following the forum for about 4 months now. I want to say I have learned so much about the human spirit following you guys along this ALS journey. I have been diagnosed with ALS and the funny thing is once you realize you have this or MAY have this you can remember little things like tripping or clumsiness or whatever that you just ignored.
Well I have a lot of questions although I have been on the internet for months like many PALS looking for any shred of information on slowing down progression, a cure, some hope, something! I know this is a common course of action. Here are my questions.
Is Steven Shackel just a guy who had a slow progression? His website is so in-depth. Do any of these supplements really do anything? Ex. Cq10, antioxidents, etc….
Why are the doctors so non-supportive of other diagnosis? I have a small disc bulge and back issues they will not even consider. (The VA in Houston and Dr. Harati in Houston) Although it may not be an issue they seem so ready to take any hope away.
I am a veteran and I served in Iraq. I was also bitten by a tick in Tennessee while in the military. Dr. Harati quickly dismissed this can be Lyme disease. He said to stay of the internet. Why would he say this when they are testing Ceftriaxone which is used to treat Lyme disease?
I seem to have progressed faster once I stopped exercising.
I believe stress is one of the main culprits in this disease pre and post diagnosis.
I have been told that no one recovers or goes into remission; If someone claims this than they didn’t have ALS. I am sorry but I don’t think the doctors know much about this disease at all in my opinion.
Lastly although I have some amount of fear about the future, my experience with ALS has alleviated much some of the pain, animosity, and selfishness I have carried for years and I honestly wonder if this was the true toxicity in my body….
Smitty