helpinhand
Active member
- Joined
- Apr 14, 2010
- Messages
- 67
- Reason
- Loved one DX
- Country
- US
- State
- nc
- City
- on the coast
I am a caregiver for my father-in-law which was diagnosised in januaray of 2010 with ALS and FTLD because fo the FTLD he really doesn't quite understand what is going on but he also never complains you will see him get SOB but when you ask him if he needs to rest he will say Im fine, Im good. Unfortunately that is the answer to everything. His FVC is only 36% he had PEG placed 4 weeks ago has no functional use of arms, and trunk weakness is severe, but he still thinks he can drive, still wants to go to work, etc. My mother-in-law, myself, and my husband take turns caring for him 24/7 and we would like to know how we might tell if he is having cramps,pain, or what ever else he says he is fine but gets up multiple times at night he says he doesn't know why. We are looking for some insight from those of you living with this in hopes to help Dad...
Thank you for your input
PS i have been here for months now just reading you all are the strongest most supportive people I have ever experienced and i thank you for being here. Nice to know you are not alone.
Thank you for your input
PS i have been here for months now just reading you all are the strongest most supportive people I have ever experienced and i thank you for being here. Nice to know you are not alone.