Old 02-28-2004, 12:02 AM #1 (permalink)
Lisa's Avatar
New Member (Say Hi)
 
Join Date: 2004
Posts: 1
Lisa is an unknown quantity at this point
Lisa Lisa is offline
New Member (Say Hi)
Lisa's Avatar
Join Date: 2004
Posts: 1
Lisa is an unknown quantity at this point
Default Mom diagnosed with ALS

Hi! Hope I'm doing this right, it's my first time.
My mom, 67 years old, was diagnosed with ALS in Dec. of 2002.
Her legs are very weak and she falls alot but so far is still walking.
I have noticed her words being heavy and slowed. And her hands are losing strength-dropping things and not being able to grip.
I understand this disease progresses differently with each person but I was wandering if from these symptoms, anyone could suggest to me what to expect next and how fast to expect it?
I'm 37, the youngest child of 4. And my mom is my very best friend! I've been hoping for a misdiagnosis but it's been over a year now and they haven't changed there minds yet.
If anyone has any advice for me or can tell me what to expect next, please let me know.
Before her diagnosis, I didnt even know what this disease was.
Thanks for listening![/b]
Lisa is offline  
Old 02-28-2004, 04:51 PM #2 (permalink)
Jane's Avatar
Member
 
Join Date: 2004
City: St Catharines
State: Ontario
Country: CA
Interest: I lost a loved one to ALS/MND.
Posts: 166
Jane is an unknown quantity at this point
Jane Jane is offline
Member
Jane's Avatar
Join Date: 2004
City: St Catharines
State: Ontario
Country: CA
Interest: I lost a loved one to ALS/MND.
Posts: 166
Jane is an unknown quantity at this point
Default

Hello Lisa,

Welcome to this site. Your Mom's symptoms sound very much like my sister, and as you said each person progresses at a different speed.
I was speaking with a man diagnosed in /86. My sister is losing her voice faster than her legs. She first lost use of one hand and like your Mom started out dropping things.

You don't say what type of medical tests your Mom has had, there several tests that can rule out other diseases that mimic ALS. Perhaps these will help you accept diagnosis ( better yet rule it out )

You should be able to get help and support from you local ALS chapter, and Mom's Dr might be able to give you an idea of the road ahead.

Keep in touch, other people on the site are much more informed than I, Carol is wonderful. Thinking of you Jane
Jane is offline  
Old 03-03-2004, 09:43 PM #3 (permalink)
Marci's Avatar
New Member (Say Hi)
 
Join Date: 2004
Posts: 1
Marci is an unknown quantity at this point
Marci Marci is offline
New Member (Say Hi)
Marci's Avatar
Join Date: 2004
Posts: 1
Marci is an unknown quantity at this point
Default

Hi Lisa,

I'm new to this website too. I had to reply to your e-mail as it was all too familiar. My mom was 66 when she was diagnosed last April/03. She is my best friend as well. My dad is her primary caregiver and he is wonderful with her so I am very lucky. I try to help out when I can.

Her symptoms started with her legs too. She used to fall a lot, but she uses a walker now. She wants to walk with it as long as humanly possible even though it is quite hard for her by now. Her speech was fine until December/January of this year. It is starting to really fade now. She has become short of breath at the simplest tasks.

I try to see her as often as I can ...but as Carol said, you have to take care of yourself and your family as they are still part of your life, and you can't feel guilty about doing that. You have to take care of your health to be strong for your mom. It is really hard at first because you don't know what is going to happen....it never really gets easy. And as Carol said, it's like Wham, another change comes that you are not prepared for. But you just have to have faith that you will be able to handle the changes however they happen….and you will.

Hopefully you have friends that you can talk to about it. I've been blessed with friends that don't really know about ALS but they are learning through me on this journey with my mom. You will find some friends that don't want to talk about it and that's okay. Do whatever it takes to find a strong support system around you.

I'm always willing to listen and it looks like there are a lot of people here who really care...
Marci is offline  
Closed Thread

Tags
advice, als, diagnosed, friend, hope, misdiagnosis, symptoms


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Just changed from being diagnosed to diagnosed Lynk Newly Diagnosed 11 08-03-2015 03:53 PM
If you've just been diagnosed - what to do now? affected General Discussion About ALS/MND 0 04-15-2015 08:45 PM
Mom just diagnosed Theworryrock Newly Diagnosed 6 03-16-2015 08:26 PM
diagnosed with ALS at age 27 Elli Newly Diagnosed 5 03-06-2015 07:06 PM
My Mom was just diagnosed with ALS tmackenzie General Discussion About ALS/MND 89 02-04-2014 07:29 PM
Diagnosed lghome General Discussion About ALS/MND 28 06-01-2012 01:19 PM
Diagnosed zaff4444 General Discussion About ALS/MND 14 12-02-2009 01:55 PM
Diagnosed...... pvale General Discussion About ALS/MND 11 08-29-2009 11:04 PM
Mom just diagnosed with PLS drvcolombo General Discussion About PLS 4 06-13-2009 04:32 PM
Just diagnosed JackieEngland People With ALS - "PALS" 36 04-28-2009 01:58 PM


All times are GMT -5. The time now is 11:19 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016