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Old 06-23-2006, 12:22 PM   #1 (permalink)
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Default Botox injections?

Dear friends,
My mother is in the advanced stages of bulbar ALS and they are taking her Monday for Botox injections for her arms. Has anyone heard of this before as a treatment? She is going to an ALS clinic in Nevada. They said it could help to give her more mobility of which she has none right now. This sounds very strange and odd to me. Her arms are all swollen and red. Her caregivers are in distress because when they try to move her she is in a lot of pain which is not being relieved by the Ultram meds she is taking. Thank you for any input on this. Patty's girl

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Old 06-23-2006, 01:43 PM   #2 (permalink)
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Default Hi Dear,

Pls. tell me what is Botox injections? Is it B 12 injection? Actually my father has also in advance stage of ALS. he is almost on bed. did any one hear or experience Stem Cell Therapy? thanks.
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Old 06-24-2006, 12:14 AM   #3 (permalink)
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Hi Patty. Sorry about your mom. I haven't heard of anyone getting Botox for what you are describing but if she is going to a registered or MDA approved clinic I would hope that they would know what they are doing. Possibly it is an experimental treatment. If it is a private clinic which I believe there are a few around then I'd be asking some serious questions real fast. Not wanting to be sued or anything but from what I've seen and read some of the private clinics have a different agenda than mainstream medicine. Mainly take the money and run. I think you ned to ask more questions.
Salma. The only things I have learned about stem cell therapy has been disappointing.
It holds promise that someday it will help but now it is not working. Don't think of spending your money on it.
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Old 06-24-2006, 12:19 AM   #4 (permalink)
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Taken from Dr. Koop. com
(HealthDay News) -- Botox is a compound, derived from a bacterium, that is injected through the skin and into facial muscles to reduce lines and wrinkles. If you're thinking about getting Botox injections for cosmetic improvement, the U.S. Food and Drug Administration offers some guidelines.

As Botox only lasts for about four months, repeated injections may be needed to maintain the cosmetic appearance derived from the treatment. As the injections wear off, lines and wrinkles reappear.

According to the FDA, some side effects from Botox injections may include droopiness of the eyelid, flu-like symptoms, nausea and headache. In rare cases, there can be more serious side effects since the treatment is derived from the same bacterium that causes botulism, a deadly illness that makes it hard to breathe or move.

You should never receive Botox if you are or may be pregnant, or are breast-feeding. Tell your doctor if you have problems with nerves or muscles, or are taking an antibiotic.
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Old 06-24-2006, 02:38 PM   #5 (permalink)
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Yes, I've heard of using botox. Check out:
http://www.mdausa.org/publications/a...managingsaliva
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Old 06-24-2006, 06:03 PM   #6 (permalink)
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Default Botox for saliva

The website the Skode refers to talks about using botox to lessen the production of saliva, which can be a big problem with people whose tongue, mouth and throat muscles are affected by ALS.
My doctor has suggested it to me, but I have not had it done. It consist of injecting botox into the parotids, the place where the saliva is produced. It will help block the formation of saliva and therefore help control the drooling.
This procedure has nothing to do with slowing the progress of ALS , all it does is stop saliva production.
I don't see how using it in Patty's mothers arms could give her more mobility, but then again, I am not a doctor.
Hugs and prayers,
Leah
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Old 06-24-2006, 08:39 PM   #7 (permalink)
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You're correct Leah, I posted too quickly before going out and meant to add for the purposes of saliva management only. Never heard of any other use of botox for ALS. Sorry for any confusion.

Pat
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Old 06-27-2006, 12:27 PM   #8 (permalink)
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Apparently it also has been used to reduce muscle spasms associated with neurological disorders. I assume here that would include spasticity which for many PALS blocks mobility even though the muscles otherwise are sufficiently strong to offer movement. I've heard of it being used but have no experience with it.

http://www.neurologychannel.com/botulinum.shtml
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