Hope, There is progressive bulbar palsy. Some Drs question if it is a disease all its own. Some think it is onset. Look at the top of this page at the forum tabs... see PBP, read some of those post too. I was DX PBP then told by the same NeuroMusclular DR that I have bulbar onset. I think, (which is dangerous), that if PBP progresses in to other muscles, then it is considered Onset. So far my main problems are speech, breathing, and choking, which is very scary. I also have COPD which does not help. Just thinking via keyboard. Different doctors different opinions. You are in my prayers as are you all. Sherry