indigosd
Very helpful member
- Joined
- Jun 22, 2009
- Messages
- 1,805
- Reason
- Lost a loved one
- Diagnosis
- 07/2009
- Country
- oz
- State
- oz
- City
- RURAL
I thought that it would be interesting and enlightening to post links to the Government required Financial Disclosures of the Organizations that are in existence and granted Nonprofit status due to their mission statement of assistance to PALS. I think that this would be very beneficial to the PALS and the CALS so that we can see who it is that is REALLY helping us and who is just making a lot of money off of ALS. You may decide that there are some organizations that you will not endorse nor will you personally raise any more capital for them. I hope that others will research and post other Financial Disclosures.
I would suggest that you pay attention to the salaries of the CEO's, top 5 paid employees, benefits, assets, do they own stock, do they do political lobbying and are they doing business with one another ie board members or family members-who is on the board? What have they done for PALS or CALS ...look at them closely and see if they are worth your time and your money. Case in point, I use to be very active in the Relay for Life for the American Cancer Society until I researched the above and realized that I was just assisting a LOT of people make a very good living.
I am going to start with this link. It is 35 pages long but well worth your time to read.
http://www.als.net/docs/pdf/AnnualReports/ALSTDI_2008_Form_990_Open_to_Public_Inspection.pdf
These are some the areas that made me want more information.
Gross income for 2008 pg 1 line G 12,753,489.00
Current year Contributions/Grants 10,863,117.00 [from who?]
Pg 4 Part iv line 28 really look at this
Pg 7 Part Vii Compensation of Officers, Directors etc..
Husband and a wife! Sean Scott President and Nancy Scott Director of Business Dev Making a combined income of $427,452.00 for the year
Maureen Lister Treasurer, Sect $236,773.00 for the year
Kim Sciascia Asst Clerk $109,163.00
Steven Perrin Chief Science Officer $342,518.00 for the year
If you go to page 26 you can see the breakdown and how much was tax deferred
I would like to know what kind of degrees are held by these individuals. I would like to know exactly what research has been done and if they have made any major break throughs since they incorporated in 1999. I would like some accountability since they are lobbying for funds and receiving charitable contributions but not showing that they gave any of their millions to charity. I REALLY WISH one of our forum family who has a background in taxes and bookkeeping would look at this and explain it to me.
I would suggest that you pay attention to the salaries of the CEO's, top 5 paid employees, benefits, assets, do they own stock, do they do political lobbying and are they doing business with one another ie board members or family members-who is on the board? What have they done for PALS or CALS ...look at them closely and see if they are worth your time and your money. Case in point, I use to be very active in the Relay for Life for the American Cancer Society until I researched the above and realized that I was just assisting a LOT of people make a very good living.
I am going to start with this link. It is 35 pages long but well worth your time to read.
http://www.als.net/docs/pdf/AnnualReports/ALSTDI_2008_Form_990_Open_to_Public_Inspection.pdf
These are some the areas that made me want more information.
Gross income for 2008 pg 1 line G 12,753,489.00
Current year Contributions/Grants 10,863,117.00 [from who?]
Pg 4 Part iv line 28 really look at this
Pg 7 Part Vii Compensation of Officers, Directors etc..
Husband and a wife! Sean Scott President and Nancy Scott Director of Business Dev Making a combined income of $427,452.00 for the year
Maureen Lister Treasurer, Sect $236,773.00 for the year
Kim Sciascia Asst Clerk $109,163.00
Steven Perrin Chief Science Officer $342,518.00 for the year
If you go to page 26 you can see the breakdown and how much was tax deferred
I would like to know what kind of degrees are held by these individuals. I would like to know exactly what research has been done and if they have made any major break throughs since they incorporated in 1999. I would like some accountability since they are lobbying for funds and receiving charitable contributions but not showing that they gave any of their millions to charity. I REALLY WISH one of our forum family who has a background in taxes and bookkeeping would look at this and explain it to me.