melalthia
Active member
- Joined
- Feb 10, 2010
- Messages
- 56
- Reason
- Loved one DX
- Country
- US
- State
- California
- City
- Boulder Creek
Hi guys
So this a basic question, but I'm a little confused with the practical side of managing care. Who manages your care? The neurologist? Or a primary physician and then, you assemble a team? I've seen people post about hospice and ALS clinics and Occupational Therapists and social workers... and i can't help but wonder who is the ultimate "decider" on who you go to and when you go to. And how often?
I ask because so far my mom is in the beginning stages of all this and she has seen her local Neurologist who sent her to university where they have neurologists who are specialists.. but they are 2.5 hours away. She will be moving to my house in a few months.. and we'll have to start over again in terms of assembling a team. How does it work? Who organizes it all?
thanks!
-mel
So this a basic question, but I'm a little confused with the practical side of managing care. Who manages your care? The neurologist? Or a primary physician and then, you assemble a team? I've seen people post about hospice and ALS clinics and Occupational Therapists and social workers... and i can't help but wonder who is the ultimate "decider" on who you go to and when you go to. And how often?
I ask because so far my mom is in the beginning stages of all this and she has seen her local Neurologist who sent her to university where they have neurologists who are specialists.. but they are 2.5 hours away. She will be moving to my house in a few months.. and we'll have to start over again in terms of assembling a team. How does it work? Who organizes it all?
thanks!
-mel