Mum is hospital maybe for good.....

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sophie22

New member
Joined
Jun 28, 2008
Messages
4
Reason
Loved one DX
Country
Aus
State
Qld
City
Cns
Hello everyone,
Mum has recently returned to hospiyal after not being able to live at home anymore, she can still eat,walk and just talk. But now she is showing signs of not being able to hold her head up...(maybe the next step?) she just stares all the time but its not like a normal stare its something else, she crys alot now and has this "smell" to her also, Im wondering if she is on her way out she has had it for 4 yrs now...she says she wants to die all the time and not live like she is... I just wont it to be over for her sake.. her birthday is april she will be 50.. im not sure is she will make it...i duno im just so sick of being in pain and hurtiing and crying. Any comments and thoughts appreciated.:cry:
 
Hi Sophie22, first of all so sorry to hear about your mom. I know that the smell of death is kind of a sweet, old body smell. Your instincts will tell you if that is what it is. I also hear that the toes will curl under about 24-48 hours prior to death. You said she can eat, but is she eating? If so, how much? They wont eat a few days before death usually. I know this from being there for my grandpa, and grandma dieing and from a friend who is a hospice worker. Do you have hospice care in Cairns? I know you are tired hun, just try and hang in there and take things one day at a time. Welcome to our forum, and please feel free to come here and vent, worry or whatever you need and we will all be there for you because we can all relate in one way or another as to what you are going through. Not holding her head up can happen with this disease, but the disease and the progression is all different for everyone. Hang in there luv, I am sending you my hugs!
Kari
PS I may live in the USA but I am an Aussie Specialist travel agent and am VERY familiar with where you are. Its a lovely place, remember to try and take some time for yourself, maybe go out to the lower reef and be dropped off on one of those sandy islands that nobody can even live on and snorkel or read a book. Quicksilver does that. A day off from hell can do the soul wonders!
 
thankyou for your reply... yes its like an old smell. yes she can still eat but chokes on everything...
 
Can they give her a feeding tube? Poor thing suffering like that! Hang in there luv!
Hugs, Kari
 
So sorry your Mum is in the hospital sophie22! She must be really having a tough time right now and I know it's tough on you as well. Please hang in there. I'm sending you thoughts and prayers...
 
So sorry you must experience all this. My heart goes out to you.
 
thinking about you sophie, your mom is young. hang in there hun.
 
sophie, wanted to check in on you today... How are you doing? So sorry to hear bad news about your Mom. You are so young to be going through this and your mom.. This is so hard, we all feel your pain. Just know we are all here for you. Big Hugs, Linda
 
Oh Sophie, I'm so very sorry. I am feeling your pain and starting to cry. God, this ALS is a BEAST. We are all here for you.

Debbie
 
I found myself thinking about you today Sophie. How are you and your mom doing? You are in my thoughts and prayers!
Big Hugs,
Kari
 
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