Andy2020
Active member
- Joined
- Jan 31, 2010
- Messages
- 84
- Reason
- PALS
- Country
- US
- State
- NE
- City
- Omaha
Hi everyone,
My Dad was just diagnosed with ALS on January 28th.
The neurologist had a terrible attitude and was rude to my Mom and sister. Not only were our lives turned upside down, but this Mayo Clinic "Specialist" was a jerk. They both asked questions and the Dr acted like they were idiots to be asking these questions. Very surreal.
When she walked us out she turned to my Dad and said, "Nice to meet you". She said it in kind of a monotone way. What a total lack of empathy.
I guess she is used to giving people this bad news or maybe it's a defense mechanism, but she was a terrible representative for the Mayo Clinic.
I realized very quickly we are on our own and then I found this forum. I am in the research stage and trying to learn all I can.
I will probably be hanging out in the research forum more right now, because reading all the stories of a loved one's decline is truelly heart breaking and at this point very hard to read. I don't want to picture my Dad in this way and I am truely hopeful that I will find some new treatments to help my Dad.
It is mind boggling to me the lack of knowledge the medical community has on ALS?
I pray for everyone that a cure is one day found.
My Dad was just diagnosed with ALS on January 28th.
The neurologist had a terrible attitude and was rude to my Mom and sister. Not only were our lives turned upside down, but this Mayo Clinic "Specialist" was a jerk. They both asked questions and the Dr acted like they were idiots to be asking these questions. Very surreal.
When she walked us out she turned to my Dad and said, "Nice to meet you". She said it in kind of a monotone way. What a total lack of empathy.
I guess she is used to giving people this bad news or maybe it's a defense mechanism, but she was a terrible representative for the Mayo Clinic.
I realized very quickly we are on our own and then I found this forum. I am in the research stage and trying to learn all I can.
I will probably be hanging out in the research forum more right now, because reading all the stories of a loved one's decline is truelly heart breaking and at this point very hard to read. I don't want to picture my Dad in this way and I am truely hopeful that I will find some new treatments to help my Dad.
It is mind boggling to me the lack of knowledge the medical community has on ALS?
I pray for everyone that a cure is one day found.