irismarie
Very helpful member
- Joined
- Nov 21, 2009
- Messages
- 1,386
- Reason
- PALS
- Diagnosis
- 05/2010
- Country
- FR
- State
- tarn et garonne
- City
- valeilles
i wa supposed to be going in for 24 hours for another lumbar puncture. I was accosted incessantly from all side by needles, bedpans and handsome young doctors (am allowed to wish)
It was HORRIBLE (even the hansome yonug doctors stuck needles in me) and they decided I must stay in and have another brain MRI, another spine MRI, another doppler test on the arteries, but could not start till Monday (this was Friday) but I could only go home for ONE night as such are the rules...
Before I left, the horrible male neuro sat by me on my bed and gently, oh so gently, asked what kind of person I am and if I had had any grave problems when these"symptoms" started. Then suggested that perhaps as the tests showed "nothing" it might be psychological........I pitied him, I really did! The EMG showed the nerves are DEAD, for god's sake!
I left saying I would go back after one night but there is no way I am going back. What can they do?§ All I want is as much practical help as pos.
My legs are completely gone now. It was a miserable day yesterday as I had to admit that finally. I fell down twice while using sticks. (I had not taken my wheelchair to the hospital and when I asked if I could borrow one was met by a blank stare and raised eyebrows). One fall was in the cafe where I was taking a coffee. Stood up to go , tried to move and fell flat on my back. You know, the café was full. ONE person, an old man, rushed to help me. Everybody else just stared in the sudden silence. I just saw a room full of open eyes and mouths, almost aggressive. Once on my feet, they continued to stare, so I struck a pose and said "For my next dance...". Not one smile, not one head turned away. We learn a lot about human nature through illness, don't we!
Fell fown again this morning while trying to pick something up. Could do without the stress this hospital is causing me. You'd never believe they are supposed to be there to help us, would you!
But the dogs are happy cos there is snow
It was HORRIBLE (even the hansome yonug doctors stuck needles in me) and they decided I must stay in and have another brain MRI, another spine MRI, another doppler test on the arteries, but could not start till Monday (this was Friday) but I could only go home for ONE night as such are the rules...
Before I left, the horrible male neuro sat by me on my bed and gently, oh so gently, asked what kind of person I am and if I had had any grave problems when these"symptoms" started. Then suggested that perhaps as the tests showed "nothing" it might be psychological........I pitied him, I really did! The EMG showed the nerves are DEAD, for god's sake!
I left saying I would go back after one night but there is no way I am going back. What can they do?§ All I want is as much practical help as pos.
My legs are completely gone now. It was a miserable day yesterday as I had to admit that finally. I fell down twice while using sticks. (I had not taken my wheelchair to the hospital and when I asked if I could borrow one was met by a blank stare and raised eyebrows). One fall was in the cafe where I was taking a coffee. Stood up to go , tried to move and fell flat on my back. You know, the café was full. ONE person, an old man, rushed to help me. Everybody else just stared in the sudden silence. I just saw a room full of open eyes and mouths, almost aggressive. Once on my feet, they continued to stare, so I struck a pose and said "For my next dance...". Not one smile, not one head turned away. We learn a lot about human nature through illness, don't we!
Fell fown again this morning while trying to pick something up. Could do without the stress this hospital is causing me. You'd never believe they are supposed to be there to help us, would you!
But the dogs are happy cos there is snow