irismarie
Very helpful member
- Joined
- Nov 21, 2009
- Messages
- 1,386
- Reason
- PALS
- Diagnosis
- 05/2010
- Country
- FR
- State
- tarn et garonne
- City
- valeilles
well, today is Christmas day and I wonder how many others out there are wondering like me if it will be their last? But the sun is shining here in SW France, the sky is blue so it is hard to be too down. (Have to say that DOWN is not my natural position in life. Always rebounded in life, first like a rubber ball, now more like a fragile soap bubble but still bumping back UP.
Perhaps we should cancel all marker days like birthdays and today - or better still make a rude gesture and tell the world that that is one more milestone we have passed, one more little battle won.
Feel so helpless. Cannot rely on my carer who is a pothead and switches from being the best carer in the world to a monster in the flick of an eyelid. Cannot understand why someone young and strong and physically healthy thinks he can enhance his life with anything that takes away his freedom (cannot live without it) and makes him totally dependent on it for calm and joy when we are all lying or sitting around dreaming of freedom and independence.
I am strong for me but being strong against his weakness is killing me.
BUT HERE IS A HUGE SMILE AND A HUG FOR ALL. See? I cannot be kept down for long....
Perhaps we should cancel all marker days like birthdays and today - or better still make a rude gesture and tell the world that that is one more milestone we have passed, one more little battle won.
Feel so helpless. Cannot rely on my carer who is a pothead and switches from being the best carer in the world to a monster in the flick of an eyelid. Cannot understand why someone young and strong and physically healthy thinks he can enhance his life with anything that takes away his freedom (cannot live without it) and makes him totally dependent on it for calm and joy when we are all lying or sitting around dreaming of freedom and independence.
I am strong for me but being strong against his weakness is killing me.
BUT HERE IS A HUGE SMILE AND A HUG FOR ALL. See? I cannot be kept down for long....