briana
Member
- Joined
- Oct 13, 2009
- Messages
- 19
- Reason
- Loved one DX
- Diagnosis
- 00/2009
- Country
- US
- State
- md
- City
- baltimore
Hello,
My name is Briana. My sister was dignosed with ALS a few mo ago; In November I moved (500miles) in with my sister (she is single) to help her.
It sems that she is progressing rather rapidly and recently developing more "bulbar symptoms".
Even before her diagnosis she complained of constant throat clearing and over the last 12 mo had at least 4-5 appts with ENT specialist.
At the time of her diagnosis, I think, she was considered a limb onset. She is often congested and complaints of sore throat. Last couple of weeks she has a lot of nasal congestion and her nouse constantly running on one side.
Her neuro is irritated with me calling and asking questions and her primary doctor tells us to check with the neuro.
My sister is her fourties and was realtively healthy before this monsterous ALS disease.
I get more information and advice from this forum than ofrom our medical providers.
I'm so sorry for ranting, but would appreciate your opinions.
Briana
My name is Briana. My sister was dignosed with ALS a few mo ago; In November I moved (500miles) in with my sister (she is single) to help her.
It sems that she is progressing rather rapidly and recently developing more "bulbar symptoms".
Even before her diagnosis she complained of constant throat clearing and over the last 12 mo had at least 4-5 appts with ENT specialist.
At the time of her diagnosis, I think, she was considered a limb onset. She is often congested and complaints of sore throat. Last couple of weeks she has a lot of nasal congestion and her nouse constantly running on one side.
Her neuro is irritated with me calling and asking questions and her primary doctor tells us to check with the neuro.
My sister is her fourties and was realtively healthy before this monsterous ALS disease.
I get more information and advice from this forum than ofrom our medical providers.
I'm so sorry for ranting, but would appreciate your opinions.
Briana