Diaphragm pacers

[Cherry]

Does anyone have information on diaphragm pacers in the u.k.?
I emailed the clinic in Paris, but they didn't reply! I know of a hospital in Sheffield who are trying to raise money for them, but they too haven't answered my emails. Getting one on the N.H.S. is probably not an option, but I think it better to find out as much as one can about anything which will help our loved ones.

Love to all, Cherry. X

 

[Cherry]

No replies again. Think I'll start singing 'No reply' by The Beatles.

Cherry.

 

[CRF8]

try the Synapse International rep. (his name is something like "Mustaf").
I had emailed him about setting up the Paris deal but eneded up in USA- Atlanta.
I think his email or phone is on their website

 

[Cherry]

Thanks for that. It's just that I didn't get any replies from the emails I've sent, and I expect the clinic in Paris don't want to give me any information on any other clinics. I shall have to ask at the M.N.D. clinic when we go in January about the possibility of getting one in the U.K. I want to be prepared like Joel has suggested.

Cherry.