Kim it is okay to vent, some days I ask the same questions you just did. I know the
als society has been really kind to speak to but when we have asked for help for things they were not able to help, I know they only have so much to work with and this makes it hard for those who suffer. So far we have had to put out the money for different things, it would be great to have some help with the equipment because it can get very expensive. This illness has been around a long time and I have wondered also god you would think they would know more by now. We have to hold on to hope. I understand how you feel. Have you read the book, Tales From The Bed, one sister had the illness and there was three sisters, they worked together and raised alot of money to help people with
als and the researchers. In the book she asks the same question, why have we not found a cure?
Sandy.
i found it 
