Atsugi
Moderator emeritus
- Joined
- Jan 11, 2011
- Messages
- 5,921
- Reason
- Lost a loved one
- Diagnosis
- 12/2010
- Country
- US
- State
- FL
- City
- Orlando
My PALS died. Then we discovered her DNA had the C9orf72 mutation. The Mayo has informed me that our children—teens—each have a 50/50 chance of carrying the defective gene.
Do I tell them? When?
This means to me that in about 15 to 25 years, when I’m 75 or 85 years old, I’ll have one or both children paralyzed and dying. So what should I do now to prepare? What to do?
Mike
Do I tell them? When?
This means to me that in about 15 to 25 years, when I’m 75 or 85 years old, I’ll have one or both children paralyzed and dying. So what should I do now to prepare? What to do?
Mike