Hevnw8s
Member
- Joined
- Mar 1, 2014
- Messages
- 17
- Reason
- Lost a loved one
- Country
- US
- State
- AZ
- City
- Phoenix
Hi everyone,
I wrote about 2 months ago and I wanted to give an update. My original thread was closed so I started a new one.
I lost my mom to ALS and was having symptoms similar to ALS. My Neurosurgeon was concerned about by symptoms and sent me to an ALS Specialist at Barrows Neurological Institute last week. I had to wait a month and a half to get in. I posted my concerns and all of you were very helpful and considerate..I truly needed that. You offered your support and asked to give an update after my appointment.
I spent 6 hours at the doctor having a series of tests including an EMG. End result, I do have weakness but it is NOT ALS. I have Chiari Malformation and a syrinx on my spine. The compression is causing ALS like symptoms so my Neurosurgeon and I are discussing surgery on the base of my brain.
To all of you, may god bless your lives and your hearts. I am on to my new journey but you will all be in my prayers.
Thank you again for your time and kindness when I needed it.
I wrote about 2 months ago and I wanted to give an update. My original thread was closed so I started a new one.
I lost my mom to ALS and was having symptoms similar to ALS. My Neurosurgeon was concerned about by symptoms and sent me to an ALS Specialist at Barrows Neurological Institute last week. I had to wait a month and a half to get in. I posted my concerns and all of you were very helpful and considerate..I truly needed that. You offered your support and asked to give an update after my appointment.
I spent 6 hours at the doctor having a series of tests including an EMG. End result, I do have weakness but it is NOT ALS. I have Chiari Malformation and a syrinx on my spine. The compression is causing ALS like symptoms so my Neurosurgeon and I are discussing surgery on the base of my brain.
To all of you, may god bless your lives and your hearts. I am on to my new journey but you will all be in my prayers.
Thank you again for your time and kindness when I needed it.