ElleT
Active member
- Joined
- Jun 19, 2013
- Messages
- 43
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- MI
- City
- Detroit Area
I'm from a C9 family and now having undeniable symptoms of ALS. I've actually suspected the disease was starting for about 9 months but was so hoping it was in my head or explained by something else. I now know this is not the case. Needless to say I am beyond devastated and have spent much of the last month crying and trying to wrap my brain around this.
I'm really not in a hurry to get an official diagnosis. Is there any reason to do it early? If I get a diagnosis early in the disease process doesn't that affect how long I can participate in trials? Any advice you can offer would be greatly appreciated.
I'm really not in a hurry to get an official diagnosis. Is there any reason to do it early? If I get a diagnosis early in the disease process doesn't that affect how long I can participate in trials? Any advice you can offer would be greatly appreciated.