Old 06-07-2016, 01:14 AM #1 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,983
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,983
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Rare disease advocacy workshops

3 in June. Anyone attending the Seattle one is welcome to couch surf a few minutes from the venue.

Last edited by lgelb : 06-07-2016 at 01:28 AM
lgelb is offline  
Closed Thread

Tags
advocacy


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Rare disease registry Nikki J General Discussion About PLS 3 06-04-2015 08:21 AM
Rare disease registry thread Nikki J General Discussion About ALS/MND 0 05-18-2015 01:17 PM
No longer rare? Clearwater AL Other 3 09-16-2014 11:23 AM
ALS vs Rare Clearwater AL General Discussion About ALS/MND 21 11-15-2013 11:34 PM
Rare opportunity to learn from, and discuss patient options based on the HIV success edjohnson General Discussion About ALS/MND 1 11-25-2012 03:41 PM
Disease progression halted in rat model of Lou Gehrig's disease MuonOne ALS Research News 21 03-06-2012 02:10 AM
Lance introduces bill to streamline regulatory framework of treatments for rare, chro Sequoia People With ALS - "PALS" 0 01-27-2012 05:14 PM
A rare form of ALS Marti General Discussion About ALS/MND 5 12-04-2009 09:55 PM
New gene therapy halts 2 boys' rare brain disease 4rhl1981 ALS Research News 2 11-06-2009 04:39 AM
ALS - Rare Disease? strikeout General Discussion About ALS/MND 30 10-06-2009 03:40 AM


All times are GMT -5. The time now is 03:22 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016