Bulbar Onset ALS? You probably know more than docs.

[laurajh]

Originally Posted by GlenBrittle

Hi Karen,

You need an insane attitude when you go for those tests.

I am the worlds biggest wuss when it comes to needles.

So , if you must blurt out something , make it crazy.

"Thank You , may I have another"
"Oh Baby ... gimme the juice"

and when they say " OK , I'm turning this up , it might hurt a bit "
counter with "I'm really starting to like you - lets do it"

Yeah it hurts like hell , but it gets you through it.

Glen

LOL I'd be telling the technician to "stand in a tub of water while doing that you sadistic #%@*!"

[Anastasia]

Well youve had a variety of responses Karen!!!!! What do they say about variety being the spice of life??? Perhaps this ISSUE is one we all could have done without tho!!!!!
Ed did have and still does have the symptomsyou mentioned.
He has the test you mentioned coming up also
We wish you well and share and care with you all. Cheers, Anastasia

[coolhandluke]

City: philadelphia
State: pennsylvania
Country: US
Diagnosed: 00/0000
Posts: 1
Re: Pulmonary Doctor

--------------------------------------------------------------------------------

Hi my name is Michael, I think that all of you, especially the ones fighting ALS are remarkably strong people i am in awe of you... my father has als for past two years and is stable we have a great relationship... Im 25 m, and think ive been having symptoms of Pals, I have a little bit of excess saliva, when i read sentences aloud i have to stop after every other sentence and there is a pretty loud audible gasp for air... when I jog outside I spit aLoT of saliva up, and dont have alot of stamina like i used to a few months back.. also during the babinski s test my mom administered shes a PA my big toe did not go up kinda goes down but my other toes twitch a little bit some times up, sometimes to the side, Ive been under alot of stress lately and sometimes my toes on my left foot will start twitching and my legs as well, also my let rib cage sticks out more than my right, and my right stomachmuscles when flexed are strong and tight and my left side of stomach not as firm, I have a history of head trauma, bad falls, injuring of the back, because of sports and drunken foolish escapades.... so am pretty worried,, I see people like AL respond all of the time, you are the man by the way i pray for you and cindy, carol and everyoneone ALOT, i feel silly posting this almost selfish but would appreciate any feedback, thank all of you so much from bottom of my heart, hope to hear back, ty alot

[halfin]

Hi Michael, welcome to the forum. I am sorry to hear about your dad, but that is great that you have a good relationship with him. My son is 26 and has been living at home for a couple of years. I had been thinking I need to encourage him to get out on his own, but now that I have been diagnosed I find I selfishly enjoy having him around.

As far as your own symptoms, it is natural in your situation to be concerned about ALS and watching for any signs of it in yourself. One question is whether there is anyone else in your father's family who has it? If it is the inherited form then it would be likely that one or more of his parents, siblings or ancestors would have had ALS. Of course as you go back a few generations, a lot of people died young so it is hard to tell. But if he has plenty of long-lived ancestors in the family tree, that would be a good sign that what he has is not the inherited form.

At your age, I would think ALS would be unlikely even if it runs in the family, but it would be a good idea to check things out with a doctor.

[coolhandluke]

Thank you very much Hal, no one else has it in my family and theres nothing wrong w. your son staying around the house all day, dont feel selfish he wouldnt have it anyother way, and neither would I, everyone needs a sidekick to make comments about the TV, we enjoy watching Americas dumbest criminals on True TV, also the show Repo Man, funny stuff, ty for your response, God Bless- Michael

[coolhandluke]

One other thing Hal i read your response on a diff post about you having ver mild symptoms would u mind sharing those with me before you had been diagnosed, ty so much- mike