daughter01
Member
- Joined
- Oct 31, 2009
- Messages
- 17
- Reason
- Loved one DX
- Country
- US
- State
- PA
- City
- Harrisburg
This is my first post. I have been reading a lot of the posts and really appreciate all the opinions and thoughts expressed here. It is such a good feeling to know that this community exists!
My mom has had symptoms since November of 08. She had tests and they said she did not have ALS. They did the needle test, blood tests and some other ones I don't know exactly. The second neurologist said that the first tests may have come in negative because it may have been too early to detect it.
Last week we met with another neurologist who did the test with the needles in the muscles. (forget the name of it). She did my mom's leg, back, neck and her one arm. At this point she stopped and said she believes it to be ALS but wants my mom to get another opinion with the ALS god at the local ALS clinic. She wanted to spare my mom having the other arm poked, because she felt that the ALS doctor would want to look at it himself. We have an apt. set up for November 12th.
My mother has had thyroid problems all her life and takes thyroid medicine. Her husband is feeling like it is the thyroid problem and not ALS. We are meeting with the endocrinologist this next week. I know some of the symptoms are similar, but does the needle test only confirm ALS or could it also indicate thyroid problems? I hope I am clear here in what i am asking.
My Mothers symptoms include:
trouble swallowing, muscle weakness in the upper body, stiffness, throbbing muscle in the upper arm, hoarse voice, some forgetfulness, difficulty making simple decisions, unsteady walking and gait, thinning hair, dry skin, thick mucus in the back of her throat,
weight loss...I know there are more but these are the ones that stick out in my mind right now.
I just have so many questions, but I'll start here. Thank you all!
My mom has had symptoms since November of 08. She had tests and they said she did not have ALS. They did the needle test, blood tests and some other ones I don't know exactly. The second neurologist said that the first tests may have come in negative because it may have been too early to detect it.
Last week we met with another neurologist who did the test with the needles in the muscles. (forget the name of it). She did my mom's leg, back, neck and her one arm. At this point she stopped and said she believes it to be ALS but wants my mom to get another opinion with the ALS god at the local ALS clinic. She wanted to spare my mom having the other arm poked, because she felt that the ALS doctor would want to look at it himself. We have an apt. set up for November 12th.
My mother has had thyroid problems all her life and takes thyroid medicine. Her husband is feeling like it is the thyroid problem and not ALS. We are meeting with the endocrinologist this next week. I know some of the symptoms are similar, but does the needle test only confirm ALS or could it also indicate thyroid problems? I hope I am clear here in what i am asking.
My Mothers symptoms include:
trouble swallowing, muscle weakness in the upper body, stiffness, throbbing muscle in the upper arm, hoarse voice, some forgetfulness, difficulty making simple decisions, unsteady walking and gait, thinning hair, dry skin, thick mucus in the back of her throat,
weight loss...I know there are more but these are the ones that stick out in my mind right now.
I just have so many questions, but I'll start here. Thank you all!