Thanks Beth. Great description!!! I have all sorts if issues. Speach problems, too weak to walk around the grocery store. Twitches all over. Shakey movement. Specially upon wakening. I can't make my finger go to the alarm button sometimes. They are thinking maybe Myasthenia Gravis or
ALS. (I do get much better after a 15 minute rest). I have had a lot of tests, all normal except the positive ANA for autoimmune disease and something the nuero said showed muscle involvement.?? bUT, being the big chicken that I am, I'm scared to get the EMG!
So she started me on Mestinon to see what happens. It's been 3 days of small doses, working up to a larger dose today. It seems easier to lift my chest to breathe but I'm not really sure if it's not just wishful thinking

Neuro said she saw atrophy in my hands. So I just wondered what it looked like. She didn't look at my tongue but it seems slim and more pointy on the end. Thanks for being here you guys!
It trurly helps!