ALSFORUMS.COM   - ALS/MND Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   - Donate to ALSForums

Go Back   ALS/MND Support Group Forums > ALS and MND Support Group > Do I Have ALS? Is This ALS?
Reply
Bookmarks:
Share |
 
LinkBack Thread Tools
Old 10-29-2009, 06:10 PM   #1 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Mesquite
State: Texas
Country: US
Diagnosed: 00/0000
Posts: 6
Jellyfish is on a distinguished road
Wink Photo of tongue atrophy

I was wondering if anyone knew where I could find photos of tongue atrophy. I have teeth indentions all around my tongue. I was wondering why that happens and was wanting to see tongue atrophy to see if I have it.
Thanks
Jellyfish is offline   Reply With Quote
 
Old 10-29-2009, 06:55 PM   #2 (permalink)
Senior Member
Registered Member
lydia's Avatar
Join Date: 2007
City: buffalo
State: ny
Country: usa
Diagnosed: 00/0000
Posts: 530
lydia is on a distinguished road
Default Re: Photo of tongue atrophy

Just google it in google images. There are a few. I can't speak from experience, but I have often heard it repeated here that the scalloped teeth marks around the edge of your tongue are normal.

Lydia
lydia is offline   Reply With Quote
Old 10-30-2009, 12:03 AM   #3 (permalink)
Extremely Helpful Member
Registered Member
BethU's Avatar
Join Date: 2008
City: Los Angeles
State: California
Country: USA
Diagnosed: 05/2008
Posts: 2,509
BethU is on a distinguished road
Default Re: Photo of tongue atrophy

Hi, Jellyfish ... I have also heard that toothmarks on the edges of the tongue are fairly common ... and normal. It can be from dehydration, mouth breathing, smoking, or nervous habits like pressing your tongue against your teeth unconsciously. The way some people grind their teeth in their sleep.

My tongue has strophied (no pictures, sorry), and there are no tooth indents on the edges. It is shriveled away from my teeth, has a very rough, gutted surface, and has narrowed in the front, like a slice of pie. (Aren't you sorry you asked? )
BethU is online now   Reply With Quote
Old 10-30-2009, 12:10 AM   #4 (permalink)
Al
Super Moderator
Registered Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 6,848
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default Re: Photo of tongue atrophy

Didn't Rose have some tongue pics a while back?

AL.
Al is offline   Reply With Quote
Old 10-30-2009, 08:22 AM   #5 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Mesquite
State: Texas
Country: US
Diagnosed: 00/0000
Posts: 6
Jellyfish is on a distinguished road
Default Re: Photo of tongue atrophy

Thanks Beth. Great description!!! I have all sorts if issues. Speach problems, too weak to walk around the grocery store. Twitches all over. Shakey movement. Specially upon wakening. I can't make my finger go to the alarm button sometimes. They are thinking maybe Myasthenia Gravis or ALS. (I do get much better after a 15 minute rest). I have had a lot of tests, all normal except the positive ANA for autoimmune disease and something the nuero said showed muscle involvement.?? bUT, being the big chicken that I am, I'm scared to get the EMG!
So she started me on Mestinon to see what happens. It's been 3 days of small doses, working up to a larger dose today. It seems easier to lift my chest to breathe but I'm not really sure if it's not just wishful thinking
Neuro said she saw atrophy in my hands. So I just wondered what it looked like. She didn't look at my tongue but it seems slim and more pointy on the end. Thanks for being here you guys!
It trurly helps!
Jellyfish is offline   Reply With Quote
Old 10-31-2009, 03:45 PM   #6 (permalink)
Extremely Helpful Member
Registered Member
BethU's Avatar
Join Date: 2008
City: Los Angeles
State: California
Country: USA
Diagnosed: 05/2008
Posts: 2,509
BethU is on a distinguished road
Default Re: Photo of tongue atrophy

Jellyfish ... MG is very hard to dx, and a certain percentage are dx on the basis of clinical symptoms only. They're "sero-negative" ... i.e., no identifiable antibodies show up in blood tests. So stay positive!

Hope the mestinon works!
BethU is online now   Reply With Quote
Old 10-31-2009, 04:58 PM   #7 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2009
City: Mesquite
State: Texas
Country: US
Diagnosed: 00/0000
Posts: 6
Jellyfish is on a distinguished road
Default Re: Photo of tongue atrophy

Been doing the mestinon for 4 days and I'm taking small doses. 30mg twice a day and today was 30 mg 3 times a day. Then I do this for a week and go back to the nuero to find out the results of my thymoma scan. So far I'm really tired but I walk normal steps instead of baby steps. The tops of my legs still feel like I've run a hundred miles, but I haven't used them much in the last 8 months so I'm sure they are shocked at all the new work I am asking them to do, like going to dog obedience class and standing for an hour, but at least my dog won "Most Scary" at the doggie costume party!
I can't do obedience class any more and usually I sit or take my power chair. But I stood and mingled for awhile hour. Today my throat is tight and feels like there is a lump in there. I get that feeling a lot after I walk or bend over a lot. I still can't tell if the medicine is really working and from what I've read, I'm taking a tiny dose. Still hoping though
Jellyfish is offline   Reply With Quote
Reply

Tags
atrophy, tongue atrophy


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools


Similar Threads for: Photo of tongue atrophy
Thread Thread Starter Forum Replies Last Post
How long until tongue atrophy katmomma Do I Have ALS? Is This ALS? 8 10-08-2009 02:42 PM
Doctor confirmed tongue atrophy? Searcher Do I Have ALS? Is This ALS? 0 10-20-2008 10:44 PM
tongue atrophy kilamangiro Do I Have ALS? Is This ALS? 3 06-07-2008 12:57 PM
Tongue Fascics vs. Tongue Tremor? shopathonic Do I Have ALS? Is This ALS? 16 04-16-2008 01:47 PM
Tongue Atrophy Question Tlcarri General Discussion About ALS/MND 5 01-25-2008 02:07 PM


    
   
   
   
  ALSforums - Get help and support with ALS/MND   


no new posts