chrissymojo
New member
- Joined
- Sep 9, 2009
- Messages
- 3
- Reason
- CALS
- Country
- US
- State
- floridA
- City
- malabar
ONSET BEGAN WITH SINUS INFECTION AND BRONCHITIS SEPT 2008. MY HUSBAND IS AN ENT SPECIALIST. HE TREATED HER. ABOUT ONE MONTH LATER SHE HAD A CHOKING AND BREATHING PROBLEM EPOSIDE LATE AT NIGHT. HE DIAGNOSED HER WITH GERD (REFLUX DISEASE). ABOUT ONE MONTH LATER SHE WAS NOT GETTING ANY BETTER AND WAS LOSING HER VOICE. i NOTICED HER SPEECH WAS DIFFERENT...LIKE MORE DELIBERATE..ALMOST SLURRING WITH SOME WORDS. MY HUSBAND TOLD ME THEN HE THOUGHT SHE MAY HAVE SOME KIND OF NEUROLOGICAL DISEASE. HE MENTIONED PARKINSONS. HER MEDICAL HISTORY INCLUDED SPINAL MENINGITIS IN 1972, IN A COMA FOR 3 DAYS AND WOKE UP WITH EYES CROSSED. SHE ALSO IS DIABETIC..DIAGNOSED IN 1995. IN APRIL OF 2009 WE NOTICED WEIGHT LOSS, LOSS OF APPETITE, LOSS OF VOICE AND SPEECH QUALITY. SHE HAD SEVERAL MORE EPISODES OF CHOKING ON FOOD OR DRINKS. WE NOTICED A CHANGE IN HER POSTURE. HER UPPER BACK AND NECK WERE LOOKING HUNCHED OVER. IN JUNE 2009 WHILE ON VACATION SHE GOT SEVERLY CHOKED WHILE TRYING TO TAKE PILLS. SHE WAS RUSHED TO THE HOSPITAL. THE
DOCTOR THERE (IN CANADA) MENTIONED HE NOTICES TWITCHING IN HER TONGUE. ALL BLOOD WORK AND CHEST XRAYS WERE NORMAL. SHE WENT BACK HOME TO HER PRIMARY CARE DOCTOR. SHE CONTINUED TO LOSE WEIGHT,LOSE STRENGTH AND LOSE ENERGY. SHE EXPERIENCED SHORTNESS OF BREATH AND SWALLOWING PROBLEMS . SHE BECAME FEARFUL TO BE LEFT LONE. SHE NO LONGER COULD WALK WITHOUT NEEDING TO SIT DOWN. sEPTEMBER 4 W GOT A CALL AT 11:30 PM. SHE WAS IN PAIN LOWER LEFT ABDOMIN. SHE WAS SENT TO ER AND DIAGNOSED BY CT SCAN WITH DIVERTICULITIS. SHE WAS ADMITTED INTO ICU. AS OF TODAY SHE IS STILL THERE. SHE IS CLEAR OF PAIN BUT IS HAVING SEVERE SHORTNESS OF BREATH, DIFFICULTY IN SWALLOWING,AND RAPID HEARTBEAT. sHE IS GETTING WEAKER BY THE DAY AND CAN BARELY MAKE IT TO THE BATHROOM. SHE IS LOSING CONTROL OF HER BOWELS AND URINE. SHE CAN BARELY SPEAK AND THE WORDS AND GARBLED.
IS THIS ALS?
DOCTOR THERE (IN CANADA) MENTIONED HE NOTICES TWITCHING IN HER TONGUE. ALL BLOOD WORK AND CHEST XRAYS WERE NORMAL. SHE WENT BACK HOME TO HER PRIMARY CARE DOCTOR. SHE CONTINUED TO LOSE WEIGHT,LOSE STRENGTH AND LOSE ENERGY. SHE EXPERIENCED SHORTNESS OF BREATH AND SWALLOWING PROBLEMS . SHE BECAME FEARFUL TO BE LEFT LONE. SHE NO LONGER COULD WALK WITHOUT NEEDING TO SIT DOWN. sEPTEMBER 4 W GOT A CALL AT 11:30 PM. SHE WAS IN PAIN LOWER LEFT ABDOMIN. SHE WAS SENT TO ER AND DIAGNOSED BY CT SCAN WITH DIVERTICULITIS. SHE WAS ADMITTED INTO ICU. AS OF TODAY SHE IS STILL THERE. SHE IS CLEAR OF PAIN BUT IS HAVING SEVERE SHORTNESS OF BREATH, DIFFICULTY IN SWALLOWING,AND RAPID HEARTBEAT. sHE IS GETTING WEAKER BY THE DAY AND CAN BARELY MAKE IT TO THE BATHROOM. SHE IS LOSING CONTROL OF HER BOWELS AND URINE. SHE CAN BARELY SPEAK AND THE WORDS AND GARBLED.
IS THIS ALS?
