yukoner
New member
- Joined
- Aug 8, 2009
- Messages
- 3
- Reason
- Learn about ALS
- Country
- CA
- State
- yukon
- City
- whitehorse
i'm a 52 yr old female. in the past 6 months i'm wakened every nite... sometimes 3 or 4 times with horrible, horrible shin pains & leg cramps. the last month it's worse... far worse. i am wakened from a deep sleep with such excruiating pain that i have to try to get out of bed to stand. when i do... both... BOTH feet are drawn upwards towards my shins. i've tried everything to release it. my husband gets up and puts cold packs... we try hot packs... i get in a hot bath. it's futile. i am screaming with pain. one nite it lasted 40 minutes.
i'm exhausted when they finally let loose and my mouth is parched. there have been 2 occasions where i've passed out. not completely but the pain is so bad that i feel as if i should die if it were to last one more second.
my doctor told me to drink tonic water. i do... i drink bottles and bottles of it. everyday.
i go to bed in fear of being wakened with this pain!
i am currently in a camp in the bush of Yukon Territory for 3 weeks. i'm loving every minute of the daytime... but dread bedtime because i'm terrified of this happening. there is only a shower here... no tub. i have no idea what i will do if it happens here!
my husband isn't even with me to help me through it.
i googled the symptom... and it led me to this ALS forum.
one of my good friends passed away from ALS a year ago. i used to live in a small Nova Scotia town where there is an unexplained high occurance of ALS. is this truly a tell tale symptom?
i also have hand spasms... where my fingers draw up but it's easier to massage them back into place.
and... i am exhausted all the time. i have been for 4 or 5 months but blamed it on menopause.
anyone have anything to tell me?
i'm exhausted when they finally let loose and my mouth is parched. there have been 2 occasions where i've passed out. not completely but the pain is so bad that i feel as if i should die if it were to last one more second.
my doctor told me to drink tonic water. i do... i drink bottles and bottles of it. everyday.
i go to bed in fear of being wakened with this pain!
i am currently in a camp in the bush of Yukon Territory for 3 weeks. i'm loving every minute of the daytime... but dread bedtime because i'm terrified of this happening. there is only a shower here... no tub. i have no idea what i will do if it happens here!
my husband isn't even with me to help me through it.
i googled the symptom... and it led me to this ALS forum.
one of my good friends passed away from ALS a year ago. i used to live in a small Nova Scotia town where there is an unexplained high occurance of ALS. is this truly a tell tale symptom?
i also have hand spasms... where my fingers draw up but it's easier to massage them back into place.
and... i am exhausted all the time. i have been for 4 or 5 months but blamed it on menopause.
anyone have anything to tell me?