Hyppo
Member
- Joined
- Sep 28, 2008
- Messages
- 24
- Reason
- Learn about ALS
- Country
- SWE
- State
- Stockholm
- City
- Stockholm
Hey people,
I havent posted here for a long time. Maybe you remember me, maybe you don't. I started with symptoms in my leg about 14 moths ago and developed bodywide symptoms a few moths later. Symptoms were mostly sensory, like tingling and burning pain and chest aches and things like that. It was fasciculations that led me (like thousands of other googling people) to think of ALS.
Well, that was almost a year ago now, and in hindsight if those symptoms struck me today, I would certainly not think of ALS. Most of my symptoms have improved, and I have no weakness (though my right led often feels a little exhausted). Two clinical neuro exams have turned up unremarkable.
So, if it was just this, it would be perfectly in order for you to tell me to just get the hell out of here and live my life –*God knows, too many people worry about diffuse possibly neurological signs – but the thing that bugs me is my speech.
About a month after my fasciculations started my jaws got super tense. Like I couldn't chew. Then after that I had a feeling of thickness in the back of m throat. I referred to it as my golfball sensation.
This developed to a speech problem that has persisted (but not gotten worse) for about 8 months. The physical sensation is that I get sore and tense in the back of the throat, especially on the right side, and that my soft palate drops down making me stuffy and nasal. I also sometimes have problems articulating certain words. Especially repetitions, like "senator" can be tough. I always feel blocked up in the back of the throat.
I have no clinical signs of weakness in the throat. No fasciculations of the tongue. My uvula deviates just slightly to the right, but my soft palate raises symetrically. No one except me has commented on my difficulties. I don't really slur (or at least, no one has ever said anything), but I feel that most consonants are harder to produce than they used to be.
My speech problems occur every day, but vary a little in intensity. On a couple occations they have been really troublesome. Other times they have been entirely fine. Sometimes this is just psychosomatical tenseness in my throat and jaw, other time I feel there's no doubt that this is a degenerative neurological disorder.
Bottom line is that the symtoms I started with in june last year and the things that followed the next few months were not really suggestive of ALS. Yet I built up a fear of it and the next thing I knew I had speech problems. The speech problems have persisted for a long timeand now I don't know what to think ...
Any input appreciated.
/Tom
(I'm seeing a speech pathologist shortly)
I havent posted here for a long time. Maybe you remember me, maybe you don't. I started with symptoms in my leg about 14 moths ago and developed bodywide symptoms a few moths later. Symptoms were mostly sensory, like tingling and burning pain and chest aches and things like that. It was fasciculations that led me (like thousands of other googling people) to think of ALS.
Well, that was almost a year ago now, and in hindsight if those symptoms struck me today, I would certainly not think of ALS. Most of my symptoms have improved, and I have no weakness (though my right led often feels a little exhausted). Two clinical neuro exams have turned up unremarkable.
So, if it was just this, it would be perfectly in order for you to tell me to just get the hell out of here and live my life –*God knows, too many people worry about diffuse possibly neurological signs – but the thing that bugs me is my speech.
About a month after my fasciculations started my jaws got super tense. Like I couldn't chew. Then after that I had a feeling of thickness in the back of m throat. I referred to it as my golfball sensation.
This developed to a speech problem that has persisted (but not gotten worse) for about 8 months. The physical sensation is that I get sore and tense in the back of the throat, especially on the right side, and that my soft palate drops down making me stuffy and nasal. I also sometimes have problems articulating certain words. Especially repetitions, like "senator" can be tough. I always feel blocked up in the back of the throat.
I have no clinical signs of weakness in the throat. No fasciculations of the tongue. My uvula deviates just slightly to the right, but my soft palate raises symetrically. No one except me has commented on my difficulties. I don't really slur (or at least, no one has ever said anything), but I feel that most consonants are harder to produce than they used to be.
My speech problems occur every day, but vary a little in intensity. On a couple occations they have been really troublesome. Other times they have been entirely fine. Sometimes this is just psychosomatical tenseness in my throat and jaw, other time I feel there's no doubt that this is a degenerative neurological disorder.
Bottom line is that the symtoms I started with in june last year and the things that followed the next few months were not really suggestive of ALS. Yet I built up a fear of it and the next thing I knew I had speech problems. The speech problems have persisted for a long timeand now I don't know what to think ...
Any input appreciated.
/Tom
(I'm seeing a speech pathologist shortly)
