t2009
New member
- Joined
- Jul 26, 2009
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- NJ
- City
- Hammonton
Hi everyone! My prayers are always with everyone.
Ok, here's what's going on.
Symptoms
May 16, 2009
Both legs started feeling slightly weak and felt funny
Within the next couple of weeks legs would become very weak. Calves and Thigh would get hard and tight and become very sore.
Around the third to fourth week it spread to both arms. Internal tremors would be felt when doing any type of activity with lifting or standing.
Around the fifth week it spread to my neck. Felt tightness and stiffness as it started on the right side of my neck then over the next couple of days it spread to the left side and then to the front of it.
Few days after that left hand started becoming weaker and fingers (pinky and ring) would start to shake. Holding the phone for more than a minute hand would start to shake. Turning pages sometimes becomes difficult.
Left ankle and foot - Control issues when putting in slipper.
Holding the phone with my shoulder creates more internal tremors in the the arm, mouth, throat. Teeth would have a slight chatter from it.
Pinky and ring fingers are numb when waking up.
Able to walk but legs still get weak and internal tremors are felt.
Get fasciculations all over my body.
When doing any activity (walking, using hands or arms, head movement) muscles are stressed not long after using them and the internal and some visible tremors are present. An example of this would be when weight training (bench pressing) and your trying to do a couple of extra repetitions, your muscles will start to shake as they become over exerted from the extra use. This is exactly what happens to my muscles after little use.
Swallowing has been affected. Skipping occurs when trying to clear mucus.
My throat involuntary swallows. This happens several times usually after waking up and trying to get back to sleep. Very dry mouth.
Skipping occurs sometimes when starting to take in a deep breath.
Muscles are very sore and some of them feel bruised.
Left shin area (just started) - a dull pressing feeling that last several seconds. It almost feels numb but no pins and needles feeling. It does it a many times a day.
Was in the hospital in June. MRI of brain and all spine areas were normal - no compression.
Just found out that I have West Nile Virus - the Igg test was positive but the Igm was negative which means that the virus is not effecting me now but was exposed in the past, so I'm not sure it's creating my symptoms.
I had one EMG and it was normal but of course when it was done and it was on my left leg the twitching was present on the leg.
Blood work was clean other than the wnv. No metals at all.
Doctors not sure.
None of my symptoms have gone away and it seems newer ones emerge - like the left shin thing.
The strength is still there but after doing any activity, the tremors start until I rest then they subside.
Any ideas about this?
Thanks so much for reading.
Ok, here's what's going on.
Symptoms
May 16, 2009
Both legs started feeling slightly weak and felt funny
Within the next couple of weeks legs would become very weak. Calves and Thigh would get hard and tight and become very sore.
Around the third to fourth week it spread to both arms. Internal tremors would be felt when doing any type of activity with lifting or standing.
Around the fifth week it spread to my neck. Felt tightness and stiffness as it started on the right side of my neck then over the next couple of days it spread to the left side and then to the front of it.
Few days after that left hand started becoming weaker and fingers (pinky and ring) would start to shake. Holding the phone for more than a minute hand would start to shake. Turning pages sometimes becomes difficult.
Left ankle and foot - Control issues when putting in slipper.
Holding the phone with my shoulder creates more internal tremors in the the arm, mouth, throat. Teeth would have a slight chatter from it.
Pinky and ring fingers are numb when waking up.
Able to walk but legs still get weak and internal tremors are felt.
Get fasciculations all over my body.
When doing any activity (walking, using hands or arms, head movement) muscles are stressed not long after using them and the internal and some visible tremors are present. An example of this would be when weight training (bench pressing) and your trying to do a couple of extra repetitions, your muscles will start to shake as they become over exerted from the extra use. This is exactly what happens to my muscles after little use.
Swallowing has been affected. Skipping occurs when trying to clear mucus.
My throat involuntary swallows. This happens several times usually after waking up and trying to get back to sleep. Very dry mouth.
Skipping occurs sometimes when starting to take in a deep breath.
Muscles are very sore and some of them feel bruised.
Left shin area (just started) - a dull pressing feeling that last several seconds. It almost feels numb but no pins and needles feeling. It does it a many times a day.
Was in the hospital in June. MRI of brain and all spine areas were normal - no compression.
Just found out that I have West Nile Virus - the Igg test was positive but the Igm was negative which means that the virus is not effecting me now but was exposed in the past, so I'm not sure it's creating my symptoms.
I had one EMG and it was normal but of course when it was done and it was on my left leg the twitching was present on the leg.
Blood work was clean other than the wnv. No metals at all.
Doctors not sure.
None of my symptoms have gone away and it seems newer ones emerge - like the left shin thing.
The strength is still there but after doing any activity, the tremors start until I rest then they subside.
Any ideas about this?
Thanks so much for reading.