Would this be considered bulbar?

[ama672]

Hi again,

I'm anxiously waiting for my upcoming appointment with the ALS specialist in a few days. In the meantime, I wanted to ask the forum about a couple of symptoms that I've been experiencing and whether or not they are bulbar related or not. As some of you already know, I'm currently experiencing left arm and right arm/shoulder weakness. This all started about 7-8 weeks ago. About 2 weeks ago, I also felt shortness of breath in the morning along with a tired feeling in the throat like I've talked for hours but in actuality had not. The voice isn't weak but feels like my throat is tired after I talk for a few minutes. By the way, I can still pick up about 80 lb dumbells in each arm for about 30 seconds. Wouldn't my limbs be weaker at this point before it progresses to my throat/lungs if it were really ALS?

I'm just frustrated by all these symptoms and having gone through the neurological ringer the past two months.

 

[lydia]

You ask repeatedly for reassurance and insight from the members of this forum but you yourself can never be bothered to answer any questions posed to you. For example, what doctors/hospitals did you visit in your city during your "diagnosed" process? What two ALS specialists are you seeing at Hopkins? When are you going to Hopkins? What did your EMG results actually say? Did you or did you not actually get an ALS diagnosed as you posted earlier (you did not deny it when Wright speculated that you hadn't in a later post of his). To me your actions seem evasive; I am open to the possibility that I am misinterpreting events-I certainly have many times in my life. But c'mon...give back a little.

 

[awieleba]

Yes, I was thinking the same thing.

Lydia, You have a much better way of asking such pointed questions than I do. You would think if someone was this worried/or progressing sx that they would have the EMG results in hand or answer a few of the questions that people ask. We take our time to respond and get nothing back. All I know is that I wish that I could still go to the gym or play tennis for that matter!

 

[brooksea]

No. There is no pattern, big sigh...