So I am looking for help does this sound like anyone's ALS story? I have been told it's not a stroke, ms, parkinsons or huntingtons but have not been told its not als. About a year ago we noticed I was dropping things especially with my left hand and tripping ALOT. Chalked it up to being not so graceful. Then could no longer write with my left hand in Feb 09. Still not a big deal as I can write both left and right side but made a note to go to doc. Got busy didnt go. In march had hard time typing w/left hand and noticed jaw "cramps" and abdominal and stomach muscle cramps and weakness some fatigue. Just thought I needed rest. Took a cruise thought I just couldnt adjust to "sea legs" so spent most time in cabin. or tripping. came home felt fatigue and left side stroke like symptoms muscle weakness spasms. out of hospital still weak. Have now progressed to using wheelchair all the time because of fatigue and severe trunk shaking when fatigued. Head leans to right when fatigued. Baclofen has helped w/cramps and spasms. Neurologist seemed disinterested but worse now. My pcp has been great there is a movement specialist but cant get in until 10/07/09. Also, have to chew my vitamins and pills trouble swallowing not severe but seems like I choked on my own saliva or just water sometimes. Any suggestions? Does this sound familiar to any of you who have ALS? How can I get some answers I'm getting pt and ot which is helpful and now have a voice unit to type on computer. I guess I feel like "HELLOOOOOOOO? anyone notice my life is being turned upside down and doctors seem rather "oh well this is how it works". I'm frustrated. Staying positive and hopeful but need some answers from somewhere. any ideas where to turn?