michelleG
Active member
- Joined
- Jun 20, 2009
- Messages
- 53
- Reason
- Other
- Country
- US
- State
- CA
- City
- Los Angeles
Hi...I am trying not to be concerned about ALS, but I don't like the symptoms I have been having for nearly a year. It started with body wide twitching which then settled down into my lower left leg and foot. My neuro has not noted any clinical weakness, even though my right leg seems to fatigue when driving long distances and I notice it is sore after not really doing much of anything. I did have an EMG performed shortly after the twitching started and then a repeat one 6 months later which showed mild denervation in one foot muscle, which was explained to me as being nothing sinister, but rather local trauma, since there were no other signs along the nerve root. Anyways, I now have a blocked eustachian tube, and it has not gone away with any OTC medicines or nasal sprays, so the doctor has now put me on a 7 day course of steroids and a five day course of z-pack. What concerns me most is that the doctor is stumped as to why I suddenly got this eustachian tube dysfunction since I have not had a cold, allergies, or a sinus infection. My kids have both been sick, but except for this, I have steered clear of the cold. The pressure has radiated from both ears to down my jaw, to the point where my jaw is completely achy by the end of the day. I have read that a blocked eustachian tube is common in people with ALS, specifically bulbar, because the muscle in the inner ear is not strong enough to hold the eustachian tube in place. Have any of you experienced problems with extreme pressure in your ears, when otherwise you were not sick. Does this sound like it could be related to ALS and should I consult my neuro regarding it? Sorry for posting so many questions at one time. Thank you for your help.