Remember We are people facing ALS

[brooksea]

Guess I am indeed Al!!! LOL

[Al]

Well if I wasn't typing with just one finger I'd tell you about the fun I've been having since Apr. 28. Talk about a bad day, how about a bad 7 weeks. Feeling somewhat better and the IV's are out. Birthday party Sat and it's supposed to rain but we got a tent and about 80 people coming so life ain't that bad after all.

AL.

[brooksea]

Well, Al very sorry about your experience. Sounds like a very grueling experience for a pALS. Glad you are feeling better!

Happy Birthday! Oh - and Happy Father's Day!

[joelc]

Seems like a lot of us are experiencing something lately!

What is happening?

Is it because of the spring season?

I hope we ALL get back to a more normal pattern very soon!

[sdsyd]

I just have to chime in here, too. I agree with the sentiments posted here. I am still in undiagnosed limbo. I recall all too well the PANIC I felt when my neuro suggested it could be the onset of MND.

For along time, I just lingered and read, until I felt it was safe to share my journey. I've made some friends along the way and gained a greater appreciation of humankind to know that there are REAL people suffering and still willing to lend an ear or a cyber shoulder- and many laughs. It's NICE to know we are not alone with neuromuscular issues and that the PALS/CALS dont kick us off their site. I think it boils down to RESPECT and ADMIRATION for bravery and courage shown by PALS/CALS and their willingness to share their input.

I have learned to use the search feature and also to look at the DATES on when a thread was started.

I think what MUST BE LEARNED ON HERE and maybe posted up somewhere in BOLD along with the SHOCKER POP-UP is that you are NOT going to get a diagnosis of ANYTHING on this forum. It is a communication portal and NOT a SUBSTITUTE for a Dr. visit or a neuro visit-

With love and admiration-

Cindy

[GlenBrittle]

Originally Posted by joelc

Seems like a lot of us are experiencing something lately!

What is happening?

Is it because of the spring season?

I hope we ALL get back to a more normal pattern very soon!

AMEN to that Joel . (and I am not a man for religion)

Al , hope your tent party went well , and you are feeling better.

Glen

[Al]

Party went well. 79 showed up. Quit raining for afternoon and started to drizzle after 8. Got to bed at 3:30 so think I had a good time. Thanks for B/D wishes everyone.

AL.

[trfogey]

This post definitely needs a bump.

[Blubear]

Yep, have to agree even though its old. I hardly go to this post. Its to frustrating for me for the people who are just being paranoid. Although some of them do turn out to be ALS, I just have a hard time replying to people who just fear it.

[rascalking]

Even I became a bit annoyed with a certain poster's duplicate threads today. If people are gonna ask for advice, I would at least expect to see something resembling ALS. Some people describe symptoms that in no way, shape, or form resemble those of ALS.

That being said, I do appreciate everything you all do in taking time out to give advice to those who seek it....

[indigosd]

To avoid upsetting the Monkey's I don't even peek into the thread!

[Just J]

Gee, makes me want to go back 2 yrs (pre-dx) to see if I posted anything ridiculous. Actually, I do remember reading posts for about 3 months before I posted anything. I don't think I paniced, just remember being frustrated after seeing so many docs and not getting a dx. I was only on here sporadically prior to Mike's dx because it was scary info and a lot to absorb. I didn't want the free lifetime membership to the club Now I kind of hang out daily. You all are awesome!! Really, thank you for making this journey a little easier.