I had my EMG this week. It has been a year since my first EMG and 6 months since my last EMG.It has been 15-17 months since my first noticable symptom (lower back stiffness and soreness) and a year since my muscle twitches began (8 months since they became global). It has also been 5 months since the ENT diagnosed me with vocal fold atrophy (which I am still able to speak fine except for soreness under my jaw which is the base of my tongue being fatigued.)
Nothing was abnormal except facics in leg muscles. He did legs (which to me look considerable smaller), arm, hand (thenar muscle which is sore whenever I use my hands alot), back, neck, and tongue. The neuro said that at this point if I ended up with ALS/MND he would write a case study on it because it would be such an unusual presentation. He said the he is very confident that ALS/MND is not what is going on based on the EMG results and the amount of time that has lapsed since my symptoms began and this EMG being done. He said that he thinks we have passed a point where we can pretty safely say that ALS is not in the picture. This has put my mind at ease about ALS/MND.
So, I am satisfied that I dont have MND, my mind is at ease. I am going to continue to pursue an awnser although I am going to let ALS go and focus all my efforts on autoimmune and metobolic until I get a definative awnser. Whatever I have is progressing so it is imperative that some causes are found. I am going to hang around here, and continue to give updates on my progress and also keep tabs on everyone elses progress. Thank-you for your support, it has helped me keep it together more than you can imagine.
CB