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Everlast

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ell, here it goes.

I'm male caucasian 26 years old,
May 2008 I was took tetane shot, and after 3 days i have urine blood, still withou no pain or other sympton, i went to the a portuguese E.r. and they tested my urine that came back normal except "eritrocitos" I went home with ciprofloxacina pills to prevente an infencion.
Then pain arrive testicle pain pubic pain back pain, went to e.r they have done some blood exames all came normal, i have made one abdominal eco all normal except 3 rocks in the left kidney where back hurt. the doctor said you have rocks in that kidney so its possible during the soccer game that one of them caused the blood. So i went back home with pain pills that were nice they help, but when the magic box ended pain had come back. My kiney doctor said me you shoul see a Ortopedic or a neurologic because leg pain testicle pain and back pain are not beeing caused by the kidney.
June 2008
i went to the dr ortopedic he made me a pelvic dorsal and cervical MRI al came back normal expecti the disks where slighty oversize butt there wasn t nerve compromise so you should see a neurologist.
Aug 2008
Went to work and i start notice left leg stifness and some weakness, went to the e.r, blood tests all normal, so that is anxiety go home take diazepam.
the pain didnt get better and one night arrive hedache rigth side, first it was pulsing pain that came from back to the front an near my ear, i have notice to see some flashes i took a pill for pain an went to bed and decide to go again to the hospital, doctors were starting to get used to me, and they laught at me saying you are hypocondriac you have anxiety, and ir refused all and said i'm a responsible man work nice girlfriend almost never went to a doctor and first time i went i was hypo don't think soo butt whatever. The neurologist decided to intern me blood testes all normal, and made me a head RMi that revelead liquor spaces dilated and cerebellum slight small, that they say it was normal, and said me " if newton had one MRI probably he had a cerebrellum small" so i trust the doctors went home and started my life again, but i had'nt alot of luck.Set 2008
Went to work bur my neck pain, my righ head pain, my right eye pain, diziness, i went there again. Conclusion the neurologist said that pain is all psicologic dizinness also etc etc, and i question her what the heck i'm the one that goes to work every day like an alcoolic not you, i'm the one that notice my eye is stuck i'm the one that notice that the eye in pain the pupil is slighty dilated. The neurologist look me again hammer me done me a lote of tests look into my eye all normal the pupil was indeed slighty dilated but the neurologist said you may born like that.... then i went to my limit and responded yes i also born with pain and muscle tiwching with a red eye and stifness in one leg. Well after that i never went to a E.r.
Dec 2008
pai more pain, i decide to go to the gym... what a terrible ideia... i done 20km biciclet 2km walking and some activitys with arms soulders etc etc.
Nexxt day i coun't move LOL the folllowing day the same... and after 9 days i decide i had enought i have to go to the doctor,,, i went there... here it comes the hypocondriac said the neurologist, they refused to take blood and send me straigth home, i went to the near hospital where my girlfriend works and she took me blood, results were nice Cpk 3600, i went with the papers back to the hospital, Neurologist said me the machine could be wrong lets repeat.. i responded no you are not touching in me anymore this is a lesson for you that anxiety hypocondriac are all of you.
Dec 2008
I went to Neuromuscles doctor decease he saw my results and send me to do more blood tests cpk was down at 298 and 5 days later back to normal.
He said me maybe you have a myopatia humm.... what the heck ok
I also started to notice that my muscles were twitching a lot more and my troath start to hurt me a lot, the medic specialist in neuromuscle perfome me a emg, results normal. he said me you are fully of anxiety and i responde your collegues done that to me...he laugh
Then i went to do the muscle biopsy, it hurts less that the emg, the results arrive muscle completely normal.
So the doctor said me maybe it was the vacine, and respond it 8 years ago i passed a similar story i head hepatite shot i also done blood in the urine and had liver values alterated.
Jan - Present
My eye still hurts i have slight ptoses in the eye slight pupil dilated Troath in pain, but the pain goes soft when i eat or drink, some chokking and chest/esofag pain, i went today to my neurologist he said me you dont have notingh so take it easy and do you life normal.
that has revelead to be harder, after this i research in internet and stopped at ALS, eye laring dystrofie,parasympatic nerve damage, DTM ATM, anxiety, hypocondriac, i stiill dont know what i have. but the pills for pain work nice the psiquiatric drugs make me diziness more amitripilina cymbalta seroxat zolof diazepam victan i took them all no results just getting worst and worst diziness and diziness.
I know that some of may symptons are overrated but after all this time i consider it normal.
Actual my blood tests are all normal i mean all because they have tooke me 100 tubes during this year,
my symptons are cramps twiching muscles that people could see in legs arms toes face eyes except the eye that still hurts and i feel kind of stuck one damm sneezee and even the belly starts it, i feel troaght pain esofag pain head pain comes and goes muscle pain, dificult staying standing, i have no loss of height or muscle i guess. i think i have my right facial size kind of paralize butt when i smile i can rise all butt the sensation that is dead meat persist i have no sensorial alteration i have lack of streght in that eye it hurts moving my eye lift has no lack of stregth.
stupid symptons, When i jump i hear "clock clok " in thar ear, i went to ear and eye medical all send me back do neurologist and neurologist send´s me to psikiactric,
This week i will try to play soccer but will be dificult all this diziness i just hope i wont fall a lot, onde day after i will take blood again to see.
Well Regards to all of you from a portuguese dude that has a bad luck experience with doctors, but like in engeniring there are bad ones and good ones,.

Actually Symptons
Twiching visible to other people
Burning
Cramps
TMJ pain
Dificulty breathing, wierd noises while sleeping i was expeled of bed by girlfriend LOL
mouth problems
cramps
voice diferente
Swalling is normal better with food in then without anything
Numbness sometimes ear pain due do tmj pain

Fear:
Neurology decease maybe ALS ( despite Medics say no way)
Psikiatry doesn't know what to do with me, he said me last time maybe would should change neuro doctor, i responded another time? no way i have enought
I suffer for medical desbelife i dont trust no one of them.
They all send me go to work there you will not have time to think about it,,, i responded well my friend i m in pain talking with you now, work does not change.
My cpk 3600 i just don´t belive that psiko can do that. But biopsy rulled out any muscle decease.

Hypocondriac.
maybe a little now always searching what the heck do i have.
doctors acused me of hipo. i don t belive i an word they say.

Anxiety
Dont accept it could be because of pain symptons it always hurts one side of head and face.

Compreension
My father e mother and girlfriend don t know what they have to do with me, i understand them, i also kind of understant the doctors Cat Mri blood virus all normal now so you dont have nothing, but revolts me if there where no machines would i be hypo also? don t know.

Could a regular person transform in hypo and anxieus in an instante?

I talk to psiquiatric and said i think i had ALS and the EMG was done correctly, because it was not made for all members included tongue and torax. He responde me i dont know what to do with you, because you are smarter that many doctors in this hospital.

I have read for hypocondriases but i hate to go to hospital hate taking blood hate doctors etc etc But yes i also question all exames and doubt persists in my head.

Anxiety
I never went to hospital withchest pain choke or dificulty breathing, also last time i was in extreme pain and they ignore me... but 5 days after my sweet girlfriend that is the only that belives in me done some labs exames and cpk was at 3600.
Doctor said me that it could me victans amitripiline or lyrica or sports.

This is my story i will try to go back to work.

I actually dont take any medicaments, sometimes i took 2 diazepam lol and i fell a sleep in a instante hehehe.
 
BLESS YOU EVERLAST.
i and many others will totally get were your coming from in your post.
so sorry you have had such a bad experience with doctors,i have had a few.

can i be totally honest ,bare in mind i am not a doctor but no less intelligent and have better manners:lol:
VIRUS,that is what is screaming out to me. why?

you had bladder/kidney problems with blood in urine.
my son has kidney damage,it started after he had a virus. he had bleeding,difficulty urinating and back pain.
the nepherologist you saw was wrong,my son has severe back pain and takes meds everyday for it plus when its real bad the pain goes into his legs.
he also gets fassic's which can happen in kidney problems.
his next function test is next month,so far they have been ok but what they dont tell you is nothing shows up till about 70% of function is lost.

a virus attacking the kidneys is something that effects young adults,especially males.
in my sons case it has damaged the filtering units.
a virus could also be connected to your other symptoms .
a virus could come and go before being detected by tests,this could account for your ck test being high then going back to normal.

the best thing is to just try to wait it out a while longer,it can take a long time in some .
you are not a hypochondriac,just someone who needs genuine understanding:)
 
BLESS YOU EVERLAST.
i and many others will totally get were your coming from in your post.
so sorry you have had such a bad experience with doctors,i have had a few.

can i be totally honest ,bare in mind i am not a doctor but no less intelligent and have better manners:lol:
VIRUS,that is what is screaming out to me. why?

you had bladder/kidney problems with blood in urine.
my son has kidney damage,it started after he had a virus. he had bleeding,difficulty urinating and back pain.
the nepherologist you saw was wrong,my son has severe back pain and takes meds everyday for it plus when its real bad the pain goes into his legs.
he also gets fassic's which can happen in kidney problems.
his next function test is next month,so far they have been ok but what they dont tell you is nothing shows up till about 70% of function is lost.

a virus attacking the kidneys is something that effects young adults,especially males.
in my sons case it has damaged the filtering units.
a virus could also be connected to your other symptoms .
a virus could come and go before being detected by tests,this could account for your ck test being high then going back to normal.

the best thing is to just try to wait it out a while longer,it can take a long time in some .
you are not a hypochondriac,just someone who needs genuine understanding:)

Well but i have taken 3 boxes of cipro antibiotic. any virus should be killed? actually i dont have back kidney pain, it comes an goes.

My ck is normal, but i'm sure one day at gym and here we go again, the docs maked all analises blood urine. and they mesure my kidney fuction...

one kidney is faster then the other,,, but no problems there..

actually i'm experience some als symptons but neuro says no away... so i dont know what to do, sometimes my eye gets stuck in upper part, kind of left facial muscle .

i dont know if it als cipro intox, anxiety, hypo,,, but all doctors say its nothing but its getting harder and harder for me... i have took anti depressives xanax all kind of things magnesium nothing helps... ...

so i still dont know what to do i never had blood again in urine.

my blood is all normal mri also normal.
 
Well but i have taken 3 boxes of cipro antibiotic. any virus should be killed? actually i dont have back kidney pain, it comes an goes.

My ck is normal, but i'm sure one day at gym and here we go again, the docs maked all analises blood urine. and they mesure my kidney fuction...

one kidney is faster then the other,,, but no problems there..

actually i'm experience some als symptons but neuro says no away... so i dont know what to do, sometimes my eye gets stuck in upper part, kind of left facial muscle .

i dont know if it als cipro intox, anxiety, hypo,,, but all doctors say its nothing but its getting harder and harder for me... i have took anti depressives xanax all kind of things magnesium nothing helps... ...

so i still dont know what to do i never had blood again in urine.

my blood is all normal mri also normal.

antibiotics kill bacteria - viruses aren't affected by it.
 
antibiotics will not do anything for a virus.
as far as i am aware there are no tests,there are thousands of viruses with new strains all the time. only in a few like in swine flu and such can they develop a test.
a virus can cause all kinds of symptoms including neurological,in fact in less severe cases of encephelitis the virus is only around for testing for a couple of weeks but can cause symptoms and disability for a long time.
the fact you had "kidney/renal" symptoms from the start plus your age (plus my sons experience with this) tells me it could be virus related.
dont underestimate the little buggers,they are nasty and do kill.
 
antibiotics will not do anything for a virus.
as far as i am aware there are no tests,there are thousands of viruses with new strains all the time. only in a few like in swine flu and such can they develop a test.
a virus can cause all kinds of symptoms including neurological,in fact in less severe cases of encephelitis the virus is only around for testing for a couple of weeks but can cause symptoms and disability for a long time.
the fact you had "kidney/renal" symptoms from the start plus your age (plus my sons experience with this) tells me it could be virus related.
dont underestimate the little buggers,they are nasty and do kill.

I dont want do go to docs but i went to 3 urulogic docs and 10 neuros, no one could tell me what i have, only thing i know is back pain twiching and neuro symptons, after i google it all came to ALS.

Should i go to doc again? or will this pass''? i hate docs, and if i go there talking about a virus, psykiatric here we go.

I have one alternative go to gym will be very high and wait what they will do to me...

should i be operated to kidney stones?

my muscle biopsy came back normal....

i think i have done all kind of analyses hiv hepatite lyme calcium magnesium b12 potassium all the things came back normal wilson decease all monucleose all things blood urine herpes all kind of things.

if it is a virus should apear somewehere in blood
 
antibiotics will not do anything for a virus.
as far as i am aware there are no tests,there are thousands of viruses with new strains all the time. only in a few like in swine flu and such can they develop a test.
a virus can cause all kinds of symptoms including neurological,in fact in less severe cases of encephelitis the virus is only around for testing for a couple of weeks but can cause symptoms and disability for a long time.
the fact you had "kidney/renal" symptoms from the start plus your age (plus my sons experience with this) tells me it could be virus related.
dont underestimate the little buggers,they are nasty and do kill.

what should i do? because i have all deceases rulled out all analises came back normal, muscle biopsy normal etc etc...

they havent done lumbar punction....

all blood vitamins iron magnesium normal, only back pain left where i have stones and twiching leg problems testicle etc etc... swalling problems ...

i dont know what to do i think its als because all symptons matched but i am no neuro, one thing i m sure i am not crazy...

i have know neuro problems and docs dont help me... i hate going to docs i was seen by 4 urologic and 7 neuros, all of them dont know....

should i take the stones out=?

or should i wait, i m afraid of going to docs because they laugh of me and dont make anything, and if i go to docs saying doc it could be a virus? they will send me to psykyatry

i´m still able to work but it getting harder and harder, and no one belives me docs girlfriend mother, i'm just a brilliant one that became crazy
 
Kidney Stones cause almost everyone of your pain problems, back, leg, testicles, I don't know why Dr. say no they don't.

I think the rest could be caused by worrying after you found ALS under google.

I think I would get treated for kidney stones and see how you do.

Good luck.

Renee
 
stress and anxiety compounding a viral infection... Try an srri/srni and post after being on it for 30 days. You cant beat a biopsy of muscles as it would show signs of ALS. High CPK is normal after strenuous exercise.
 
everlast,the doctors would probably agree if you mentioned a virus.
they always put it down to a virus when they can not find whats wrong:roll:

yes,get the kidney stones sorted out. they can cause infection and general ill feeling.

as for als..............anyone could have a symptom or two associated with als,but there are so many things that share similar symptoms.
from looking at the broader picture nothing in your case indicates als,it does not have progression and symptoms you have.

just see how things go for now,eat well,drink plenty of water for the kidney stone/bladder problems and just look after yourself in general.
hopefully in time things will improve.
wishing you all the best:-D
 
srri/srni what does this mean? sorry my ignorance
 
everlast,the doctors would probably agree if you mentioned a virus.
they always put it down to a virus when they can not find whats wrong:roll:

yes,get the kidney stones sorted out. they can cause infection and general ill feeling.

as for als..............anyone could have a symptom or two associated with als,but there are so many things that share similar symptoms.
from looking at the broader picture nothing in your case indicates als,it does not have progression and symptoms you have.

just see how things go for now,eat well,drink plenty of water for the kidney stone/bladder problems and just look after yourself in general.
hopefully in time things will improve.
wishing you all the best:-D

not always they send me to psikiatry i think i i said maybe its a virus... here we go you are hypo bla bla... i dont think i´m hypo i alwasy hated docs never went there before and already hated him

.. 'm actually at work.. yes i´m a bit scared with all this and googling was not helpfull but no doctor help me... my cpk is back to normal... i´m only having problems in mouth voice feeling wierd troaah cramps in arms legs, i´m afraid of going to gym i think my cpk will go over and over again... but i´m willing to try ...

my muscles move alone.. they twich they streech that cause pain etc etc...
 
should i ask my doc a new emg? i´m having bulbar problems and thorax problems,,

my tongue vibrates and soft or hard palate feel wierd...

i never done bulbar or thorax emg? should i ask neuromuscular doc to do me that i have consult in 30july .... i have muscles moving in back ass legs feets calfs


kidney painkomes an go
 
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