I started a thread a while ago but things have changed (or not) since then. I've had weak muscles for about two months. Every week I seem to get a bit weaker. My right leg is a lot weaker though I can still get around fine. It just feels very wimpy and does not support me as it once did. It sort of throbs and I have to stretch it whenever I can. I fight for a subway seat as never before lol. Some minor twitching and cramping all over. Some tremors but I've had one in my left arm for years anyway. Been to a neuro and an ENT doc.
I went to a neuro last month (one month after the onset of symptoms). She did the emg test and the nerve test (the one with the sensors where they give you a jolt) but only in the weaker area of the initial onset (left arm and leg). She also gave me a physical. She said no ALS. She had an MRI done, just regular not the contrast one, and it came back neg for MS. The ENT did some autoimmune tests and they came back neg for all. My PCP did sedementation tests and CPK and all normal but was a month ago. I am still waiting for the tests results from Athena labs (talk about a monopoly and extortion). I believe the neuro had me tested for MG. I asked her receptionist to ask her about CIPD but no response. So I wait and get more worried as my body slowly gets weaker, especially my right leg. This could take another three weeks with Athena. I WILL go to another neuro. My cat's vet has MS and she told me to be proactive and not just wait around to the neuro - that I needed at least two opinions. Anyway that's it.
If anyone (Laurel are you there?) has any info on the kinds of tests involved with CIPD (especially what types and what they are called/codes) I would be most appreciative. I want to get to the bottom of this before I wind up in a wheelchair which would not be good for a five-flight walkup.
I went to a neuro last month (one month after the onset of symptoms). She did the emg test and the nerve test (the one with the sensors where they give you a jolt) but only in the weaker area of the initial onset (left arm and leg). She also gave me a physical. She said no ALS. She had an MRI done, just regular not the contrast one, and it came back neg for MS. The ENT did some autoimmune tests and they came back neg for all. My PCP did sedementation tests and CPK and all normal but was a month ago. I am still waiting for the tests results from Athena labs (talk about a monopoly and extortion). I believe the neuro had me tested for MG. I asked her receptionist to ask her about CIPD but no response. So I wait and get more worried as my body slowly gets weaker, especially my right leg. This could take another three weeks with Athena. I WILL go to another neuro. My cat's vet has MS and she told me to be proactive and not just wait around to the neuro - that I needed at least two opinions. Anyway that's it.
If anyone (Laurel are you there?) has any info on the kinds of tests involved with CIPD (especially what types and what they are called/codes) I would be most appreciative. I want to get to the bottom of this before I wind up in a wheelchair which would not be good for a five-flight walkup.