tag0620
Distinguished member
- Joined
- Nov 18, 2008
- Messages
- 175
- Diagnosis
- 11/2008
- Country
- US
- State
- ut
- City
- park city
Our new neuro had in his notes that a follow up emg was inevitable, but that he probably wouldn't request it until after our next visit on 5/15.
But...today we get a phonecall saying that he's squeezing us in with another dr. for that follow up emg because he wanted it BEFORE our next appt on 5/15.
Now..since our last visit he's gotten a new MRI of that thoracic disc confirming a compressive myelopathy, he's gotten all of our pre-surgical/post-surgical films on the broken back/stenosis/fusion l5-s1, and he's had the results of a vascular study showing no vascular compromise but symptoms (purple foot, cold legs/feet, sensory deficit) consistant with the myelopathy.
We are just FREAKING out because the last time we had an emg done...Jim was diagnosed with als....but....from the last neuro's notes...the emg that he was diagnosed with was not specific on whether his upper limbs showed denervation, or his thoracic paraspinal showed denvervation, or whether both showed something. It did show fibs in the low thoracic paraspinal...but that can be explained by the herniation with the myelopathy.
I guess we just need to keep faith that again..it all started with the ski accident, that he still has spinal cord injuries, and that damning report was not specific...and I know that with both legs with denervation/weakness/atrophy, combined with denervation in the thoracic paraspinal (IF there were no other reason...which there IS) is reason enough to diagnose him...but he has other possible causes and we just have to pray that they find nothing in any other areas...but we're both SCARED!
It's this coming Monday at 12:30pm. Do you think that maybe they see a reason for surgery and they are trying to determine if they can/should do it by getting him in for this emg early?
Please pray for us that they don't find anything that's not explained by his spinal cord injuries.
Tracy
But...today we get a phonecall saying that he's squeezing us in with another dr. for that follow up emg because he wanted it BEFORE our next appt on 5/15.
Now..since our last visit he's gotten a new MRI of that thoracic disc confirming a compressive myelopathy, he's gotten all of our pre-surgical/post-surgical films on the broken back/stenosis/fusion l5-s1, and he's had the results of a vascular study showing no vascular compromise but symptoms (purple foot, cold legs/feet, sensory deficit) consistant with the myelopathy.
We are just FREAKING out because the last time we had an emg done...Jim was diagnosed with als....but....from the last neuro's notes...the emg that he was diagnosed with was not specific on whether his upper limbs showed denervation, or his thoracic paraspinal showed denvervation, or whether both showed something. It did show fibs in the low thoracic paraspinal...but that can be explained by the herniation with the myelopathy.
I guess we just need to keep faith that again..it all started with the ski accident, that he still has spinal cord injuries, and that damning report was not specific...and I know that with both legs with denervation/weakness/atrophy, combined with denervation in the thoracic paraspinal (IF there were no other reason...which there IS) is reason enough to diagnose him...but he has other possible causes and we just have to pray that they find nothing in any other areas...but we're both SCARED!
It's this coming Monday at 12:30pm. Do you think that maybe they see a reason for surgery and they are trying to determine if they can/should do it by getting him in for this emg early?
Please pray for us that they don't find anything that's not explained by his spinal cord injuries.
Tracy